[badjaw94]

Hi,
I am new to this forum and not even sure I know what I am doing, anyway, I was diagnosed with Nico in 1997. I had surgery on my upper and lower jaw and felt somewhat better. I still had issues however, and had to do hydrogen peroxide/water rinses through my sinuses in order to have a normal life. That worked for years until recently, when the rinses started to cause pressure on my inner ear and dizziness. Because I can no longer do the rinses, my symptoms are slowly coming back. My symptoms involved some facial pain, but are mostly systemic in that I suffer from severe fatigue, muscle and joint aches, memory loss and lack of ability to concentrate. I have discovered that my local doctor that did the surgeries in '97 is longer in practice and I have been searching the internet for doctors who do treat it and find they are apparently no longer practicing either. I also read that there was a lawsuit a few years ago against some of the doctors who treat this illness. Can anyone lead me to some kind of help? I hate to slip back into being semi bedridden again!
Thank you!