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Old 12-13-2011, 09:13 AM #1
breezy1 breezy1 is offline
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Default Neuropathy and vaccine??

I may have forgotten to mention when I had the flu vaccine - it was in September and this paresthesia was already well under way.
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Old 12-13-2011, 09:42 AM #2
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Do you get the vaccine each fall?

Vaccines are being looked at as triggers for many autoimmune issues. And not only in humans.

Vaccines in cats are known to cause many diseases now.
In fact they have a new adjuvant free vaccine for cats (rabies), to avoid the cancer that the older vaccines with adjuvants that are thought now to cause vaccination induced sarcoma.
The distemper boosters for cats cause autoimmune kidney disease, for one. Think very carefully, and do your research before any more vaccines.

Vaccines for humans may contain contaminants...other viruses in fact. Watch Dr. Blaylock's informative videos. There is even a video on YouTube now with the former head of vaccines at Merck that ADMITS to contamination in the past. (you have to look around for it --and I warn you it is disturbing).

There is a nerve damage that comes from virus infections... called viral mimicry... Our PN board has links to special tests to test for various gangliosides that might be present after viral assaults. The viral reactions are usually body wide and burning, but can present in many complicated ways.
This is when the body makes antibodies during an infection and when that is over the antibodies remain and attack the host and depending on protein sequences may mimic nervous tissue.
One very well known autoimmune type happens with Strep and it is called PANDAs... but one of our posters at PN discussed with his specialist this "mimicry" situation is possible with other infections too, and we just don't have diagnostic tests to measure them all.

Damage to the trigeminal nerves may just "happen". So you may want to post at our TN forum, as some people have bilateral trigeminal damage and discuss it there.
http://neurotalk.psychcentral.com/forum26.html

Sorry to say, it is not an easy problem you have. But there are many people here who you can read about their experiences. We are all different, and it can be confounding to get the correct help. And sometimes there is no answer, sadly. At PN the "no answer" is called idiopathic.

I think an answer to Bryanna's questions for a start, on this venue, is a good beginning, and also you can start to read the links I shared with you.
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Old 12-13-2011, 11:58 PM #3
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Breezy,

Thanks for all the info... I am going to read and sort through it and see what I can come up with. I think I see some possible trigger points but I don't want to reply just yet, I want to review it more closely.

By any chance do you have xrays that you could post of the areas that have been worked on?

Bryanna

Quote:
Originally Posted by breezy1 View Post
Okay, here goes:

1, 3 and 4. Dental procedures were on 30 and 21. # 30 had a crown and they (dentist and endo) decided it needed a root canal - unfortunately, the canal was calcified so after two sessions the endo decided that the tooth would fail as root canal - not possible. So tooth was extracted by oral surgeon with plan for an implant. That side of mouth has had a block 4 times (2 for rc, one for tooth extraction and one for implant insertion) - my understanding was that it was a long lasting block. I specifically asked and was told that articaine or septacaine was used. Each time it seemed that they had to use 3 cartridges for anesthetic doing both a block and then infiltration (I think it is called). On the other side, tooth #21 was part of a 3 unit bridge, so bridge was cut off and then options were a 4 unit bridge (as #21 was removed) or 2 implants. This side also was anesthetized 4 times again articaine was used.

2. No mercury

5. I never get ill, however, I had the flu shot this year and had a reaction that needed to be reported - hot flush, weakness, nausea about 3 hours after injection. Was fine the next day.

6. Seems like the anesthetic went away quickly and a few days later this tingling started and it has now been ongoing - since June after extraction. First it was on the right side only and now on both sides. Treatment has been ongoing.

7. Initial sensation was in right upper cheek near TMJ, but I am not good at recalling exact details. It gets confusing as I was seeing dentist, endo and oral surgeon and each was doing his thing.

8. I am 65 and I do have hypothyroid, which is under control.

9. I have never had a negative reaction to any anesthetic (was actually surprised by the reaction to the flu shot this year).

10. I did have difficulty getting numb and as I said above, oral surgeon used 3 cartridges each time. He seemed surprised at the lack of total numbness after 7 to 10 minutes.

The sensation is awful, again, not horribly painful, but irritating and the loss of taste is annoying. I keep chewing my cheeks and biting my tongue.

With the concern being expressed I'll hold on the B3 until I hear more. But, am sure he said niacin.

Also, have had 3 implants placed with bone graft on 20 and 21. # 20 implant failed and was removed along with the graft. In April oral surgeon is planning a bone graft from my lower jaw to the implant site. I am really concerned about having more dental work done, but at the moment I am having difficulty chewing the food that I cannot taste. It has been difficult and any help will be appreciated.

Thanks
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Old 12-15-2011, 10:21 PM #4
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Hi: I'm a pharmacist, and I've read through these posts, and it does sound very much like you have autoimmune problems going on that could contribute to the paresthesia you now have.

Some researchers have pointed to latent effects of vaccines on susceptible individuals. Obviously, not everyone has problems from vaccines, but we almost never know who will before they receive a vaccine. The damage can show up much later, triggered by many different things. So I would not rule that out, especially since you did have the H1N1 vaccine, a particularly sloppy vaccine.

About the vitamins that have been recommended to you: Vitamin D3 is so helpful for almost everything in our bodies (since it's not really a vitamin but a hormone). Get tested, but I'll bet you are low since most people are, and then get started on 5000 units-10,000 units a day, retest in 3 months.

Niacin (B3) is more commonly prescribed for cholesterol, up to 6 g a day max. I don't know that I would jump on board on that one. The B vitamins, in general (with some exceptions), are meant to be taken together in balanced quantities. I don't find the same information that your doctor said about it.

B12 is an exception because if you're deficient, you would supplement with just B12. You could just start on this, but get tested first to avoid wasting your money on a supplement you don't need. Our absorption of B12 from food decreases with age because our stomachs produce less acid, which is required to absorb B12. So an older person taking the same amount of B12 as a younger person will derive less benefit!

Good luck to you. It's complex, and it may turn out to be multi-factorial (as I suspect).

Stacy
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Old 12-16-2011, 07:47 AM #5
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Quote:
Originally Posted by flygirl7 View Post
Hi: I'm a pharmacist, and I've read through these posts, and it does sound very much like you have autoimmune problems going on that could contribute to the paresthesia you now have.

Some researchers have pointed to latent effects of vaccines on susceptible individuals. Obviously, not everyone has problems from vaccines, but we almost never know who will before they receive a vaccine. The damage can show up much later, triggered by many different things. So I would not rule that out, especially since you did have the H1N1 vaccine, a particularly sloppy vaccine.

About the vitamins that have been recommended to you: Vitamin D3 is so helpful for almost everything in our bodies (since it's not really a vitamin but a hormone). Get tested, but I'll bet you are low since most people are, and then get started on 5000 units-10,000 units a day, retest in 3 months.

Niacin (B3) is more commonly prescribed for cholesterol, up to 6 g a day max. I don't know that I would jump on board on that one. The B vitamins, in general (with some exceptions), are meant to be taken together in balanced quantities. I don't find the same information that your doctor said about it.

B12 is an exception because if you're deficient, you would supplement with just B12. You could just start on this, but get tested first to avoid wasting your money on a supplement you don't need. Our absorption of B12 from food decreases with age because our stomachs produce less acid, which is required to absorb B12. So an older person taking the same amount of B12 as a younger person will derive less benefit!

Good luck to you. It's complex, and it may turn out to be multi-factorial (as I suspect).

Stacy
Thanks for all of the above. I had already called the neuro to ask about testing for B12, which he doesn't seem to think is required at the moment. I already take D3 for bones. Neuro says he doubts that we are dealing with anything related to immunizations. He told me to wait until I see the maxillofacial surgeon next week. Given this I have opted to start the B12, which can't hurt and can always be discontinued if it does not seem to help. Does this make sense? Ovbiously this would preclude doing a B12 test that would show anything later.

Originally I was thinking that I was dealing with an articaine reaction, but now I think that it may actually be mulit-faceted. I'll keep you posted.
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Old 12-16-2011, 10:20 PM #6
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Hi Brie,

I sent my email address to you in reply to your pm to me. Perhaps you can attach the xrays to my email?

Ok.... some more questions with the assumption that you had a 3 unit bridge on teeth #19, 20 and 21. Number 19 was an anchor tooth, #20 was previously extracted and #21 was recently extracted. You had bone grafts and implants placed in #20 and 21 sites.... #21 failed. Yes?

1) Is #19 root canaled? If so, how many times?

2) Was tooth #21 root canaled? If so how many times? Why did it need to be extracted?

3) Missing tooth #20... had that been previously root canaled? If so, how many times? Why was it extracted and approximately how long ago?

4) What was the sequence of treatment on #20 and 21? How many surgeries to extract, place bone grafts, place implants? Was all of that done at the same surgery?

5) How did you know the implant failed...was the implant loose... was there infection?

6) The flu shot that you had a reaction to.... was that shot AFTER you began having these facial sensations?

7) Tooth #30 is mutli rooted and for all of the canals to be calcified, it had to be diseased for quite some time. Was there an infection picked up on an xray of this tooth?

8) Do you remember having "fistula's" on any of these teeth? These are pimple like bumps on the gum above/below an infected tooth.

With regard to supplementing with B12... I would suggest to use a sub-lingual form because this method bypasses the digestive tract, requires no stomach acid to break it down and it enters the bloodstream more quickly. I personally use Jarrows Formula Methyl B-12 5000 mcg, one tablet per day Mon thru Sat.... I take all of my supplements 6 days on, one day off as prescribed by my Integrative physician.

I agree that your condition at this point is multi faceted. I also think that at least one source or culprit to this problem may be infection. Your reply to these questions may be helpful and those xrays would be too if at all possible.

Hang in there....
Bryanna






Quote:
Originally Posted by breezy1 View Post
Okay, here goes:

1, 3 and 4. Dental procedures were on 30 and 21. # 30 had a crown and they (dentist and endo) decided it needed a root canal - unfortunately, the canal was calcified so after two sessions the endo decided that the tooth would fail as root canal - not possible. So tooth was extracted by oral surgeon with plan for an implant. That side of mouth has had a block 4 times (2 for rc, one for tooth extraction and one for implant insertion) - my understanding was that it was a long lasting block. I specifically asked and was told that articaine or septacaine was used. Each time it seemed that they had to use 3 cartridges for anesthetic doing both a block and then infiltration (I think it is called). On the other side, tooth #21 was part of a 3 unit bridge, so bridge was cut off and then options were a 4 unit bridge (as #21 was removed) or 2 implants. This side also was anesthetized 4 times again articaine was used.

2. No mercury

5. I never get ill, however, I had the flu shot this year and had a reaction that needed to be reported - hot flush, weakness, nausea about 3 hours after injection. Was fine the next day.

6. Seems like the anesthetic went away quickly and a few days later this tingling started and it has now been ongoing - since June after extraction. First it was on the right side only and now on both sides. Treatment has been ongoing.

7. Initial sensation was in right upper cheek near TMJ, but I am not good at recalling exact details. It gets confusing as I was seeing dentist, endo and oral surgeon and each was doing his thing.

8. I am 65 and I do have hypothyroid, which is under control.

9. I have never had a negative reaction to any anesthetic (was actually surprised by the reaction to the flu shot this year).

10. I did have difficulty getting numb and as I said above, oral surgeon used 3 cartridges each time. He seemed surprised at the lack of total numbness after 7 to 10 minutes.

The sensation is awful, again, not horribly painful, but irritating and the loss of taste is annoying. I keep chewing my cheeks and biting my tongue.

With the concern being expressed I'll hold on the B3 until I hear more. But, am sure he said niacin.

Also, have had 3 implants placed with bone graft on 20 and 21. # 20 implant failed and was removed along with the graft. In April oral surgeon is planning a bone graft from my lower jaw to the implant site. I am really concerned about having more dental work done, but at the moment I am having difficulty chewing the food that I cannot taste. It has been difficult and any help will be appreciated.

Thanks
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Old 12-20-2011, 03:25 PM #7
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Hi all, this site gave me hope in times of recent desperation so I wanted to post regarding a success! On 26th Oct 2011 I had 4 of my lower teeth extracted (these were baby teeth) at the same time I had a bone graft to build up my jaw ready for implants. I have a condition called Hypodontia (lack of teeth). The surgery was quite extensive lasting four hours, I was in hospital for 2 nights. After the tooth extraction/bone graft I was in a state, very bruised and numb from my right ear right down to the middle of my chin. Slowly I began to regain some feeling... down to my chin (I didn't really notice this as I was watching the bruising disappear rather than the feeling coming back). After a few weeks I started to feel a lot better but realised that my chin was still very numb - I panicked and began to search the net. I was so upset that this might be permanent facial paresthesia and when speaking to my consultant they didn't exactly reassure me saying 'we hope the feeling will come back' Anyway to cut a long story short and give some of you in a similar situation so hope it has been 8 weeks since my surgery and I have pretty much all of my feeling back in my face/chin/lips I started taking vitamin B Complex B12 about a month ago and think this really helped!!!! So all of you out there have faith!! Keep smiling even if it is a wonky one, a little like mine.
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Old 12-20-2011, 11:08 PM #8
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Hi sarah,

You had a difficult, extensive oral surgery and I'm so glad to hear that it went well!! Most of the time, the numbness is temporary but it can take several weeks to go away completely.

The B complex vitamin, B12 in particular, may be the most important vitamin when it comes to nerve tissue regeneration. I'm sure it helped in your case and if you continue to supplement with it, no doubt it will continue to help with the healing process throughout the placement of the implants.

Thanks so much for sharing your story!!!

Bryanna

QUOTE=sarah29;834045]Hi all, this site gave me hope in times of recent desperation so I wanted to post regarding a success! On 26th Oct 2011 I had 4 of my lower teeth extracted (these were baby teeth) at the same time I had a bone graft to build up my jaw ready for implants. I have a condition called Hypodontia (lack of teeth). The surgery was quite extensive lasting four hours, I was in hospital for 2 nights. After the tooth extraction/bone graft I was in a state, very bruised and numb from my right ear right down to the middle of my chin. Slowly I began to regain some feeling... down to my chin (I didn't really notice this as I was watching the bruising disappear rather than the feeling coming back). After a few weeks I started to feel a lot better but realised that my chin was still very numb - I panicked and began to search the net. I was so upset that this might be permanent facial paresthesia and when speaking to my consultant they didn't exactly reassure me saying 'we hope the feeling will come back' Anyway to cut a long story short and give some of you in a similar situation so hope it has been 8 weeks since my surgery and I have pretty much all of my feeling back in my face/chin/lips I started taking vitamin B Complex B12 about a month ago and think this really helped!!!! So all of you out there have faith!! Keep smiling even if it is a wonky one, a little like mine.[/QUOTE]
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