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Old 12-12-2011, 08:22 AM #1
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Lightbulb

Why B3?
What type of B3....straight niacin? or niacinamide?

If it is niacin, you could be having nerve symptoms ... it causes flushing and tingling. I would stop the B3 for a while and see what happens.

I'd get testing for B12. And see if you are low. Some paresthesias on the face are low calcium related to low Vit D status. So getting D tested is a good idea too.

The nerve distribution you describe sounds like trigeminal involvement. Did you get inhaled flu vaccine? Have you had chicken pox in the past? Herpes Zoster can activate and give pain symptoms without the rash. You can ask for blood work to measure Herpes titres to see if they are elevated.
Inhaled flu vaccine has been implicated in Bell's palsy which involves the trigeminal nerve. But your description is only sensory, which suggests shingles without rash.

I can't comment on the dental aspect of this, but I am sure Bryanna will be here when she gets a chance.
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Old 12-12-2011, 08:36 AM #2
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Default Facial paresthesia

Haven't started the B3 yet, was just recommended by the oral surgeon on Friday, so not that.

Had flu shot, not nasal spray, so not that.

Bells Palsy has been ruled out, as has stroke, or anything to do with the brain or brain stem.

Have had chix pox, but no rash currently, so herpes zoster doubtful. Nobody has yet suggested that as a possibility.

Am seeing a specialist at Harvard next week.

Neuro says inflamed trigeminal 2 and 3. Question is why and what to do. Can't imagine that this might be permanent.
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Old 12-12-2011, 09:36 AM #3
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Lightbulb

Zoster without rash is called Zoster sine herpete.

If you Google that you'll find some explanations.

One thing you can try, is when you see the doctor next:
Ask to try amitriptyline. In low doses, 10 or 25mg a day, this can help with nerve problems and healing. If it works, it points to an injury to the nerve or viral actions.

Have you tried ice on that side? Ice typically puts Herpes into
remission for some. 20 minutes tops... 2 or 3 times a day.

A diet high in arginine may encourage herpes to activate.L- Lysine helps quiet it. So taking some lysine may help. If it works, then viral cause is likely. Try 2 grams a day. You should see some effects within a week or two, if it is going to work.
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Old 12-12-2011, 10:24 AM #4
breezy1 breezy1 is offline
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Default

Quote:
Originally Posted by mrsD View Post
Zoster without rash is called Zoster sine herpete.

If you Google that you'll find some explanations.

One thing you can try, is when you see the doctor next:
Ask to try amitriptyline. In low doses, 10 or 25mg a day, this can help with nerve problems and healing. If it works, it points to an injury to the nerve or viral actions.

Have you tried ice on that side? Ice typically puts Herpes into
remission for some. 20 minutes tops... 2 or 3 times a day.

A diet high in arginine may encourage herpes to activate.L- Lysine helps quiet it. So taking some lysine may help. If it works, then viral cause is likely. Try 2 grams a day. You should see some effects within a week or two, if it is going to work.
Just to clarify, this is both sides of my face, not one sided. Googled Zoster sine herpete, but I have had no fever or illness at all - I very seldom get sick at all, so to me it seems unlikely, but...... Ice does not sound appealing, ironically heat sounds better, but I'll try anything. Heat hasn't helped. Will work on L-Lysine and talk with Dr. about amitriptyline and see what he says.
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Old 12-12-2011, 04:05 PM #5
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Quote:
Originally Posted by mrsD View Post
Why B3?
What type of B3....straight niacin? or niacinamide?

If it is niacin, you could be having nerve symptoms ... it causes flushing and tingling. I would stop the B3 for a while and see what happens.

I'd get testing for B12. And see if you are low. Some paresthesias on the face are low calcium related to low Vit D status. So getting D tested is a good idea too.

The nerve distribution you describe sounds like trigeminal involvement. Did you get inhaled flu vaccine? Have you had chicken pox in the past? Herpes Zoster can activate and give pain symptoms without the rash. You can ask for blood work to measure Herpes titres to see if they are elevated.
Inhaled flu vaccine has been implicated in Bell's palsy which involves the trigeminal nerve. But your description is only sensory, which suggests shingles without rash.

I can't comment on the dental aspect of this, but I am sure Bryanna will be here when she gets a chance.
Actually the oral surgeon suggested the B3, as he said it has been shown to help CP when the nerves demylinate (sp?). He did say to start slow with 1000mg and that I could actually go up to maybe 5000mg if it seemd to be helping. He seems very knowledgeable about vitamin therapy. He said starting too high could make me light headed. I haven't started the niacin at all yet, its on my list to buy tomorrow.
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Old 12-12-2011, 06:13 PM #6
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Shocked

Never heard about that.... B12 yes... B3 no.

5000mg of B3 is toxic to the liver over time.

I'd call him back and confirm.

B12 + folate and B6 help remyelinate nerves along with fish oil.

Not B3. You need to do some research on this. And get tested for B12 and Vit D deficiency. Something is not right here... some miscommunication or something.

A normally healthy person would not need 5000mg of niacin for anything! IMO
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