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Old 02-21-2013, 02:57 PM #1
Stacy R Stacy R is offline
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Default Tooth Extracted - 1 year of misery later - 9 Dental professionals do not know!.

In Jan 2012 I had an infected root canal extracted. It has never been right since. 2 nights after extracted a "swoosh" of air literally blew my mouth open. very odd. For next 6 mths, it felt like something was sliding around in extracted site...had site reopened/debrieved and I have beeen told the area is healed. My teeth hurt all the time. it feels like a bunring metalic substance is oozing out of my teeth, makes my teeth sting, eyes burn, lips tingle/numb. My teeth feel hallow. Been to ENT - nothing. 4 dentists - teeth are "fine" - maybe bacteria getting lodged in the new open space (brush more! B12 deficiency, take zinc, etc); Neurologists - trigemial nerve damage (ok, trying it...on tegretol now...no relief); periodontist ( treated for trench disease (my idea, not hers) --no relief. Even went to Oral and Maxif at Mayo Clinic, no ideas of their own...hmmm, we would call it Atypical Facial Pain, continue w/trigen nerve damage meds. NOTHING is helping, now it is 1 year later of pain. Can anyone help? Know what else I can try? I rad a NICO/Cavitational Disease, Dr Shankland, and was going to try that (basically reopen extraction site, scrape away bacteria, but Mayo Dr. strongly recommends not doing this as it may cause further nerve damage. Hmmm. Off thing. When I lie down, everything Stops causing any pain. Could it be some type of sinus issue that first ENT CT did not pick up? are there other types of sinuses that are causing the drainage feeling? (I do not have known sinus issues). WHAT AM I MISSING? I have had brain MRI, jawbone MRI, blood work - all negative. MY lips sting, my eyes sting, my teeth feel like they are made of foil and ache. It feels like something is leaking out of them. It causes me to "suck" all the time, because something is oozing out and it is a stinging, gross, "substance" - although nothing is there. ANY IDEAS? I would really appreciate it. This takes over my daily life. I have never had any other health issues, no meds til this one tooth was extracted. And, I am not thinking it is nerve damage. Meds have no effect.
Stacy R.
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Old 02-22-2013, 09:47 AM #2
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Bryanna Bryanna is offline
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Hi Stacy,

The first thing to be aware of is that infected teeth rarely show signs of a problem until the infection has spread beyond the tooth. Even when the infection has spread the symptoms can be anywhere from vague to severe. With that said, the tooth and the bone can be infected for months, even years before it is addressed. Also, infected teeth are sometimes over looked or "watched" by the dentist way longer than they should be because if the patient is not complaining of chronic pain then the apical lesion (cyst at the tip of the root) that is often seen on an x-ray is misdiagnosed as scar tissue instead of the infection that it really is.

A perfect example of this frequent on going infection is directly related to all root canaled teeth. During a root canal, the only areas of the tooth that can be "somewhat" debrided are the visibly large canals. The microscopic canals, of which there are countless numbers of them in every tooth, also have nerve tissue inside of them but because there is no way to access these tiny canals, this once live tissue becomes necrotic and remains infected for as long as the tooth is present in the mouth. Another problem with the root canal procedure is that the repetitive scraping and high speed rotary drilling inside the tooth causes injury to the tooth resulting in major inflammation. So visualize the entrapment of the bacteria inside these tiny canals surrounded by angry inflammation and then add to this the toxic chemicals used as irrigation in an attempt to "kill" off the residual tissue in the large canals that were missed during the scraping. Eventually, the pressure from the trauma, inflammation and chemicals forces the bacteria to proliferate through the tooth into the ligament into the jawbone. Sometimes but not always, the bacteria burrows a hole through the bone, through the gum showing up as a "pimple" above/below the tooth. This pimple is called a "fistula" and it is the bacteria finding a way to release the pressure. This does not mean the infection has left the tooth, it means the infection has proliferated.

Therefore, once a tooth has become infected, it remains infected irrelevant of what procedure is done to it. Long term tooth infection will cause deterioration in the surrounding area of bone and often beyond that. Upper teeth can be in close proximity to the sinuses. It is not unusual for a tooth infection to spread to the sinus and again, the longer the infection has been present the more proliferated the bacteria and inflammation can become and the more difficult it can be to eradicate it completely. Removing the infected tooth (preferably instead of doing the root canal) is the first step in eliminating the original source of the infection.

There are countless nerves in the face and head that can become irritated, traumatized, and injured from the proliferation of these infections. It can be very difficult to pinpoint where this begins and where it ends. Treating this can be very frustrating because one treatment may help with one area and not another... and so on.

You have had a lot of medical testing done that has basically not been able to pinpoint the problem. Are your physical symptoms real?? I believe so. Could some of them be related to anxiety over all of this... sure. But that doesn't dismiss the fact that something is going on. Can this problem be figured out here.... unfortunately no.

The fact that your symptoms subside completely when you lay down, I believe, is an important symptom to look into. Obviously there is a release or relief of pressure or inflammation someplace in your head when you lay down. What do the doctors say about this symptom?

Bryanna





Quote:
Originally Posted by Stacy R View Post
In Jan 2012 I had an infected root canal extracted. It has never been right since. 2 nights after extracted a "swoosh" of air literally blew my mouth open. very odd. For next 6 mths, it felt like something was sliding around in extracted site...had site reopened/debrieved and I have beeen told the area is healed. My teeth hurt all the time. it feels like a bunring metalic substance is oozing out of my teeth, makes my teeth sting, eyes burn, lips tingle/numb. My teeth feel hallow. Been to ENT - nothing. 4 dentists - teeth are "fine" - maybe bacteria getting lodged in the new open space (brush more! B12 deficiency, take zinc, etc); Neurologists - trigemial nerve damage (ok, trying it...on tegretol now...no relief); periodontist ( treated for trench disease (my idea, not hers) --no relief. Even went to Oral and Maxif at Mayo Clinic, no ideas of their own...hmmm, we would call it Atypical Facial Pain, continue w/trigen nerve damage meds. NOTHING is helping, now it is 1 year later of pain. Can anyone help? Know what else I can try? I rad a NICO/Cavitational Disease, Dr Shankland, and was going to try that (basically reopen extraction site, scrape away bacteria, but Mayo Dr. strongly recommends not doing this as it may cause further nerve damage. Hmmm. Off thing. When I lie down, everything Stops causing any pain. Could it be some type of sinus issue that first ENT CT did not pick up? are there other types of sinuses that are causing the drainage feeling? (I do not have known sinus issues). WHAT AM I MISSING? I have had brain MRI, jawbone MRI, blood work - all negative. MY lips sting, my eyes sting, my teeth feel like they are made of foil and ache. It feels like something is leaking out of them. It causes me to "suck" all the time, because something is oozing out and it is a stinging, gross, "substance" - although nothing is there. ANY IDEAS? I would really appreciate it. This takes over my daily life. I have never had any other health issues, no meds til this one tooth was extracted. And, I am not thinking it is nerve damage. Meds have no effect.
Stacy R.
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Old 03-04-2013, 01:28 PM #3
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Vowel Lady Vowel Lady is offline
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Quote:
Originally Posted by Stacy R View Post
In Jan 2012 I had an infected root canal extracted. It has never been right since. 2 nights after extracted a "swoosh" of air literally blew my mouth open. very odd. For next 6 mths, it felt like something was sliding around in extracted site...had site reopened/debrieved and I have beeen told the area is healed. My teeth hurt all the time. it feels like a bunring metalic substance is oozing out of my teeth, makes my teeth sting, eyes burn, lips tingle/numb. My teeth feel hallow. Been to ENT - nothing. 4 dentists - teeth are "fine" - maybe bacteria getting lodged in the new open space (brush more! B12 deficiency, take zinc, etc); Neurologists - trigemial nerve damage (ok, trying it...on tegretol now...no relief); periodontist ( treated for trench disease (my idea, not hers) --no relief. Even went to Oral and Maxif at Mayo Clinic, no ideas of their own...hmmm, we would call it Atypical Facial Pain, continue w/trigen nerve damage meds. NOTHING is helping, now it is 1 year later of pain. Can anyone help? Know what else I can try? I rad a NICO/Cavitational Disease, Dr Shankland, and was going to try that (basically reopen extraction site, scrape away bacteria, but Mayo Dr. strongly recommends not doing this as it may cause further nerve damage. Hmmm. Off thing. When I lie down, everything Stops causing any pain. Could it be some type of sinus issue that first ENT CT did not pick up? are there other types of sinuses that are causing the drainage feeling? (I do not have known sinus issues). WHAT AM I MISSING? I have had brain MRI, jawbone MRI, blood work - all negative. MY lips sting, my eyes sting, my teeth feel like they are made of foil and ache. It feels like something is leaking out of them. It causes me to "suck" all the time, because something is oozing

out and it is a stinging, gross, "substance" - although nothing is there. ANY IDEAS? I would really appreciate it. This takes over my daily life. I have never had any other health issues, no meds til this one tooth was extracted. And, I am not thinking it is nerve damage. Meds have no effect.
Stacy R.
I'm so sorry to read of your pain. I too would emphasize with the doctors about the laying down situation. If you are open to it, you might try taking a small amount of a Trycyclic antidepressant. It works very well for pain (even nerve pain) and of course might help with the frustration of dealing with this upheaval. I hope you are able to get to the bottom of this soon!
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Old 11-10-2013, 01:15 PM #4
Bluedragonfly Bluedragonfly is offline
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Default Did you find a solution? I have the same symptoms.

Quote:
Originally Posted by Stacy R View Post
In Jan 2012 I had an infected root canal extracted. It has never been right since. 2 nights after extracted a "swoosh" of air literally blew my mouth open. very odd. For next 6 mths, it felt like something was sliding around in extracted site...had site reopened/debrieved and I have beeen told the area is healed. My teeth hurt all the time. it feels like a bunring metalic substance is oozing out of my teeth, makes my teeth sting, eyes burn, lips tingle/numb. My teeth feel hallow. Been to ENT - nothing. 4 dentists - teeth are "fine" - maybe bacteria getting lodged in the new open space (brush more! B12 deficiency, take zinc, etc); Neurologists - trigemial nerve damage (ok, trying it...on tegretol now...no relief); periodontist ( treated for trench disease (my idea, not hers) --no relief. Even went to Oral and Maxif at Mayo Clinic, no ideas of their own...hmmm, we would call it Atypical Facial Pain, continue w/trigen nerve damage meds. NOTHING is helping, now it is 1 year later of pain. Can anyone help? Know what else I can try? I rad a NICO/Cavitational Disease, Dr Shankland, and was going to try that (basically reopen extraction site, scrape away bacteria, but Mayo Dr. strongly recommends not doing this as it may cause further nerve damage. Hmmm. Off thing. When I lie down, everything Stops causing any pain. Could it be some type of sinus issue that first ENT CT did not pick up? are there other types of sinuses that are causing the drainage feeling? (I do not have known sinus issues). WHAT AM I MISSING? I have had brain MRI, jawbone MRI, blood work - all negative. MY lips sting, my eyes sting, my teeth feel like they are made of foil and ache. It feels like something is leaking out of them. It causes me to "suck" all the time, because something is oozing out and it is a stinging, gross, "substance" - although nothing is there. ANY IDEAS? I would really appreciate it. This takes over my daily life. I have never had any other health issues, no meds til this one tooth was extracted. And, I am not thinking it is nerve damage. Meds have no effect.
Stacy R.
I have very similar symptoms. I had 4 root canals after an accident where teeth died. May also have more dying teeth. Have just had two implants done to replace infected root canals.

Have you found an answer? I'm still in pain.
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Old 11-25-2013, 10:20 PM #5
justjane37 justjane37 is offline
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Hi,

If it is neurological VowelLady is right in that you should try Amitriptyline or Nortriptyline. Many Trigeminal Neuralgia sufferers have good success with these. People with TN take many different types and different dosages of medications. What works for one does not work for another.

Your post stood out for me because you have been seen by so many professionals and no one can give you an answer. That is a very common story for people that are eventually diagnosed with TN.

The laying down thing is strange though. That does not sound like TN. Bryanna is right about that.

Good luck to you and I hope you find some relief!!

Quote:
Originally Posted by Stacy R View Post
In Jan 2012 I had an infected root canal extracted. It has never been right since. 2 nights after extracted a "swoosh" of air literally blew my mouth open. very odd. For next 6 mths, it felt like something was sliding around in extracted site...had site reopened/debrieved and I have beeen told the area is healed. My teeth hurt all the time. it feels like a bunring metalic substance is oozing out of my teeth, makes my teeth sting, eyes burn, lips tingle/numb. My teeth feel hallow. Been to ENT - nothing. 4 dentists - teeth are "fine" - maybe bacteria getting lodged in the new open space (brush more! B12 deficiency, take zinc, etc); Neurologists - trigemial nerve damage (ok, trying it...on tegretol now...no relief); periodontist ( treated for trench disease (my idea, not hers) --no relief. Even went to Oral and Maxif at Mayo Clinic, no ideas of their own...hmmm, we would call it Atypical Facial Pain, continue w/trigen nerve damage meds. NOTHING is helping, now it is 1 year later of pain. Can anyone help? Know what else I can try? I rad a NICO/Cavitational Disease, Dr Shankland, and was going to try that (basically reopen extraction site, scrape away bacteria, but Mayo Dr. strongly recommends not doing this as it may cause further nerve damage. Hmmm. Off thing. When I lie down, everything Stops causing any pain. Could it be some type of sinus issue that first ENT CT did not pick up? are there other types of sinuses that are causing the drainage feeling? (I do not have known sinus issues). WHAT AM I MISSING? I have had brain MRI, jawbone MRI, blood work - all negative. MY lips sting, my eyes sting, my teeth feel like they are made of foil and ache. It feels like something is leaking out of them. It causes me to "suck" all the time, because something is oozing out and it is a stinging, gross, "substance" - although nothing is there. ANY IDEAS? I would really appreciate it. This takes over my daily life. I have never had any other health issues, no meds til this one tooth was extracted. And, I am not thinking it is nerve damage. Meds have no effect.
Stacy R.
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