ELna,

Thank you for posting the photos!

The photo of your upper right..... is this the side with the sinus that is still open?

Looking back at your panoramic xray..... your first molar on the upper right which is your 6th tooth from the front tooth and the sinus around this tooth does not look very healthy. If this is the same side that the sinus is still open, then the problem could be stemming from the first molar and whatever is going on with the sinus in that area. Has any dentist mentioned anything to you about that first molar and the sinus?

Yes, I agree the gum area in the upper right does not look normal... or real healthy. If there is a problem with the first molar, then this is what could be preventing the area from healing.

The line between your nose and mouth.... was that always there or just since you had the extractions?

Bryanna

Dear Bryanna,
Thank you for the link! I had a look but by holistic they mainly mean mercury - free and that's it, while promoting how root-canal saves the teeth. Will have a more thorough look later on - at the moment I'm in desperate search for an OS.
Thank you for having a look at the photos and x-ray again. I really think you are the reason I have not lost it yet :-)
Yes, the right side where the first molar looks bad is the same side where the sinus perforation is not closing.
Noone mentioned anything about the first molar yet. In fact, I had 3 doctors (dentist, OS) in the room at one point at the hospital, they were looking at the very same tooth on the new x-ray and laughing how funny one of the roots is stretching away. To the direction of the extraction site I must add.
I'm trying to get in to another hospital this week.
I would not mind at all having that one out too if possible so will not have to face this again.
No, the line between my nose and mouth has never been there before. It has sg to do with the now much smaller mouth cavity on the right side. I just want someone to fix the gum, cut it free from where it seems grown very close to the teeth now.
Thank you. Will update once there us a positive change!

ELna,

A dentist who is mercury free would be a start because at least it shows his awareness of the toxicity problem with that issue. Also, holistic dentists who condone root canal therapy tend to be more open minded, as they are with the mercury issues, about the systemic risk of root canals than conventional dentists. Meaning they are not quick to tell their patient to have a root canal and they understand the jeopardy of retaining infected teeth. They have to be careful how they go about the topic of root canal because their conventional peers do not want this topic discussed in any way other than positive. A holistic dentist may be able to refer you to a like minded oral surgeon.

The way you are going now, you are seeing one similar minded dentist after the other. No one is addressing the first molar or the possibility of the connection between that molar and your open sinus. Even to repair that sinus, if the molar is in trouble, the repair won't fix the problem. Regarding the cheek tissue... that too needs to be addressed from a different perspective. It is not easy to just cut away that tissue and make the cheek flat again. Even if that is done, there is no guarantee that the line under your nose will change for the better.

Someone unassociated with the NHS or whatever it is..... needs to evaluate your situation because those in the system seem to be sticking together like glue.

If you take another look at that list and just let me know which ones are within a reasonable distance, I will review their website and give you my thoughts on whether they would be worth a try or not. If you think, that could be helpful to you............

Bryanna

Dear Bryanna,

Thank you so much for offering to have a look at the 'holistic' dentists London has to offer. At this point I need a good hospital but if the problem gets solved once I'll need a reliable dentist to deal with the damage being caused to my teeth right now.
There are three with a website:
http://www.w1dental.com/
http://www.adelaidedentallounge.co.uk/
http://theellaclinic.com/
Would you really have a look and tell me who looks the most genuine please? Thank you so much!

After my visit at the hospital on the 13th July and the promise of two operations and 4 surgeons declaring that there is zero chance for it to heal without operation, I decided I will grow the hole in by myself because there's no one I can trust with operating on me
Raised my vitamin c to 8000 a day, added 30 mg of zinc, used the bioptron lamp three hours a day and every awaken minute visualised the hole to be growing in. I imagined how at first the sides of it are just holding hands then folding arms then put their faces together until they're in full hug. I also imagined myself over and over being ecstatically happy finding out it healed. I also followed my (non-)eating regime. Spent a good amount of time crying and trying hard not to have a nervous breakdown.
Went to another hospital this Tuesday and doing the nose pinch exercise the surgeon could not hear air coming. My nose still gets wet while drinking and I'm quite sure I can not blow my face up (too scared to try), but he said that he definitely would not open this up and that I should carry on not sneezing and blowing the nose for another 4 weeks, watch out for sinus troubles for another 2 months, but that it seems to be healing now. He did not believe it was minimum 5x5 mm last week.
I do know it is not closed yet but at least I have some hope now. And time to recover emotionally for a while even if it turns out I would need the op in the end (no no).
My gums is an issue, it stretches and hurts. I was told by this surgeon again to give it a couple of months to stretch and get better but I think they're just not comfortable with doing anything about it and it does not seem important enough for them. But for me it's painful, uncomfortable and depressing.
I booked an appointment to see him: http://lukecascarini.com/
Next week. I will follow his advice on both questions. I'm not eating (I do get nutrition) anyway so might as well spend the money elsewhere.
About NHS - the extractions and the first two surgeries were all done at a private practice. Then I turned to NHS because it is the same chance to find someone good or bad as to go to another private. But then I decided to go for one of the bests as the outcome will remain with me forever and I'm only 38.
And if I was lucky enough to almost fully recover from total facial paralysis that RHS caused last year, I can not loose my smile and face on the same side just yet.

I'm sorry it looks like I'm writing a novel to you now. Thank you again for all your kindness, patience and help.

ELna,

The ellaclinic would be my first and only choice based on the list you shared. That dentist is educated in the toxicity, toxicology and oral systemic connection which are huge PLUSES!! He makes emphatic statements about all of those issues and works with complimentary practitioners. He does perform root canals and uses a laser to help with the sterilization of the tooth. However, he also wants the patient to be well informed about the risks of root canal therapy and gives reference to that subject. He is into nutrition and full body health. YES, if you can, please seriously consider going to him.

The oral surgeon that you booked an appointment with seems very well versed on various surgical techniques. I think the one problem you may run into with most dentists that you see will be regarding the surgery that involved the cheek tissue. Most dentists are going to be a bit hesitant to mess with that because they cannot be sure what he did exactly and they don't want to end up taking the blame for any further complications. So it is important that when you approach this topic with any of them, that you do not sound like you are accusing the other dentist of any wrong doing. As that will cause further hesitation on their part. Just let them know that this is truly uncomfortable and you are concerned about living with this and what it can become. I hope I have explained that okay.........

Regarding the closing of the sinus perforation.............. I HOPE YOU ARE CORRECT and it is healing!! Yes, vitamin C is truly a miracle healer and antioxidant. However, it is imperative that you drink lots of water throughout the day because without adequate hydration, excessive oral vitamin C over a period of time can turn to little crystals in the kidneys. So drink water..... water.... water!!!

Bryanna

Dear Bryanna,
Thank you!!
I'll go see that dentist when the rest is over.
Yes, you explained very well how I might cause further hesitation. I will approach the topic the way you described it, without any hint of blaming anyone (even though I do). I hope the super-surgeon is confident enough and for a reason :-).
Yes, thank you - the one thing I forgot to mention is also PLENTY of water and some coconut water (pure). I think that's one of the reasons my sinuses are still ok.
Thank you Bryanna! (with slightly less teeth )

ELna,

You are always welcome

Okay good to hear about the drinking of water AND the pure coconut water..... excellent!!

I am a huge believer in vitamin C as I have seen it do miraculous things. I personally take a daily dosage of 4000 mgs of buffered ascorbate in powder form just for optimal health. If I feel a little fatigued or I'm around people who are ill, I take more.

Keeping fingers crossed that your sinus continues to heal and that you have better dentistry in the future!!

Keep us posted......

Bryanna

Dear Bryanna,

Hope you are well.
Update: I went to see the super-surgeon today.
There is still a hole but definitely got smaller again. He said he would not operate because there is a chance that it will close on its own and that sometimes they give it months not just weeks to heal. This is good, right?
He also said that the operation when they take the cheek fat (buccal?) would leave me bruised, unable to open my mouth for a while, further reduced mouth cavity and looking horrific for a couple of MONTHS.
Whatever happens I will not have this done. I rather leave with a tiny hole on the edge of sinusitis, seriously. Now I understand why the OS in the hospital wants to try the small operation first.

About the gum: he said if it will not get better it can be fixed but i should wait months maybe even a year for it to get better and that this is normal after an operation like that. I found out what the 2nd OS did: "... removed the perforated part and made a Wassmund-Rehrman-lobe, which I lengthened to the tooth 14. Closed it per primam with mattress and knot stitches. It was one of the most difficult sinus surgeries i have done" - that "lengthened" thing causes the trouble now. I wish he told me that it was going to be like this, I might have opted out. All he said was that he will take the gum from there and it will not be seen when i smile. He failed to mention that there will be no full smile but a lot of discomfort for quite a while though.

From what the surgeon said I gathered that might have been better if they just left it open at the very beginning. It might have healed and I would not have this pain and discomfort and looks. But both OS said it absolutely HAD TO BE DONE or else I would end up with serious sinus problem and big operation and trouble. They were obviously wrong, as 7 weeks this Friday, still open and thanks God nothing wrong with the sinuses yet. My RHS ear hurts a lot more lately though.

I am a bit desperate and scared at the moment.
One more month of just waiting around scared to eat or talk, feeling horrible every time the hole make a noise (when "eating"). The gum and the inside of the face hurts. And there is no need for 4th opinion, this is what it is.

I am sorry. I am really happy if I do not need an operation, of course.
Thank you, sorry, his came out just venting. Will update in a month. Thank you for everything!!!!

Dear Bryanna,

Further update: went back to the hospital today as I had the appointment booked for the surgery anyway and because she was willing to try the less invasive operation first before the buccal horror. She said the hole is much smaller but she would not operate anyway as it is still really red, we agreed in a month to see what happens.
I think the redness is a good sign - things are still happening there instead of having a fully healed permanent fistula, right?
Bryanna, last question and you will not hear from me until healed: do you know of any other form of sinus closing at this location (upper last molar) that does not involve further torturing my already so damaged cheek?

Thank you ever so much.

Update on my situation. Thank you for all the help again Bryanna. I'll update once in a while.

Last month: tried to heal, lost another 8 kg. Canker sores that I never had before appeared, healed, etc.

Went back to the hospital today. She said there's no way of knowing for sure whether the perforation is closed or not but as my nose still gets wet after I drink there must be still a communication. The site looks better but still red. I asked to wait another two months maybe it closes on its own she said ok. I didn't tell her that noone will operate on the fistula, I'll rather live with it from now on.

Do you remember how I was freaking out that something wrong was going on with the gum? Well, she said there's nothing that could be done to expand the oral cavity on the right side - now my inner cheek starts from right above my teeth 14-17, leaving me with a feeling of pulling on the right eye, pain when talking, ruined smile, a deep crease above the upper lip and not proper circulation in between the upper lip and the nose that leaves the area white and horselike. My speech is impaired, I thought it would get better but it doesn't and the stretching pulling either. She said the area can not stretch upwards so this is how it will be. And how I will be. I'm 38, lost my looks forever and cant talk normally - the sound of it is annoying, even hurts my own ears. She booked a consultation with another surgeon to see if it's worth at all to smoothen the surface with laser above tooth 14 - but she thinks not. On the left side the bone broke and the sharp bone piece sticking into my cheek will need to be done if does not settle - but that's nothing, I know.
ah yes and if as she thinks they'll have to close the fistula, the mouth cavity would get even smaller so I just won't have it done.

Also, there is no chance for implants on that side (that might be corrected, not easily though, if i wanted implants but I dont and wont).
It is absolutely sure that I'll never be able to wear dentures.
So let's just hope that I'll die before that - ergo pretty soon

Now I understand why the super(expensive) surgeon acted the way he did, pretending it didn't matter but in the review he wrote he hopes it will become 'acceptable' - he knew I was done just didn't want to say it. Whatever.

Today the surgeon said that I could eat on both sides so I came home and had some soft bread soaked in yoghurt, goat cheese and just a bit of smoked salmon, finally. Washed my teeth, checked with a photo and the site is more damaged than before - the gum broke open a bit along the next tooth. I think it is from the pulling as I moved my mouth. So back to liquids and baby food (1st phase) for a while longer I guess.

I've booked an appointment with the dentist Bryanna you helped me choose and will sort out my bite and try if I can have a partial denture on the left side.

Right now I feel like I don't want to live any longer, with RHS PHN and now this, I'm blaming myself for not saying no to the second surgery and that's the worst. But tomorrow I'll pull myself together and start to learn to live with this too, it could be so much worst it's not a brain tumour or anything like that after all. I can live decades, a long, uncomfortable, shitty life filled with pain and loneliness, since noone will want to be in the company of someone who looks bad, sounds bad and feels bad all the time. Yeeeeeah. Only joking. I'll learn just not starting today.