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Old 02-02-2009, 08:06 PM #1
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Default Fosomax, actonel, boniva........

With compassion and much respect ........ I urge those of you who have been prescribed oral or IV Bisphosphonate drugs to please do some research on them and not just trust your doctor's word that they will do you no harm. These drugs are being prescribed like candy to people of all walks of life with minimal to severe bone problems. Most often there are alternative methods to these drugs....... I urge you to discuss in detail with your doctor what your alternatives are and please do not accept his/her word that these drugs are the only path of treatment for you.

In dental surgery, we are seeing more and more cases of osteonecrosis of the jawbone in people who take ORAL Bisphosphonates. This condition of the jawbone is often irreversible and can be life altering. Please don't be misguided into thinking that the person needs to be ill or ridden with dental neglect because it is being seen in healthy people as well who are taking these drugs. Please inform yourself wisely about these drugs before you make a decision to put them into your body.

Here is one of the latest reports from the University of California, School of Dentistry......
http://www.news-medical.net/?id=44569

Bryanna
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Old 02-02-2009, 08:26 PM #2
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Amen Byranna!

My aunt who has had breast and bone cancer for 10 years now took one of these and ended up with osteonecrosis and had to have all her teeth removed and now live with no teeth or detures.
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Old 02-02-2009, 08:47 PM #3
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Hey Bryanna! Thanks for posting this. I've done so much research on Osteo drugs, my head is literally spinning. I just finished 16 months of Boniva injections every 3 months and my T scores were noticably worse on my last Dexascan. I am so disheartened, but am thinking of the Reclast once a yr IV. My Dr wants me to do the daily Forteo injections, but I'm not too pleased w/what I'm reading about that either. It's scary when your'e trying to treat a disease and end up w/another one! I'm very angry about these Osteo meds!!

Thanks again!
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Old 02-02-2009, 09:00 PM #4
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I'm taking Fortical, a nasal mist similar to Boniva or the others. I see my PCP on Wednesday so I'm going to ask him about this. I'll go off this med if the risk is so high. I have osteopenia and if I have to I'll exercise each day to get off this medicine.
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Old 02-03-2009, 06:59 AM #5
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Default Osteopenia

Hi ewizabeth,

According to the extended research, there is no reason why someone who has osteopenia should be taking a Bisphosphonate. There are other ways to treat your condition that would benefit your long term health and increase your bone density.

First of all, your hormones should be checked to see what your imbalances are so they can be adjusted. Hormones play a huge role in our bone health! The most efficient way to test hormone levels are via saliva testing because this method tests the unbound hormones that are circulating in the bloodstream. Serum hormone tests measure the hormones that have already been utilized which is irrelvant. See ZRT labs website for information. Once the results are known, then a compounding pharmacy can make a formula of hormone(s) that is best suited for your individual needs. These hormones are called Biological or Natural Hormone Replacement Therapy. They can be be made in a cream, a gel, oral pills, sublingual drops, patches......etc. They are very different than synthetic hormones and do not cause the unwanted side effects or increase the risk of cancer. The body accepts these type of hormones so readily that only minute amounts need to be taken. Of course the saliva testing should be repeated periodoically so the dosages can be adjusted accordingly. AND of course you need a practitioner to order the hormones! Women's International Pharmacy has a list of practitioners that they will send out in the mail. You could visit their website for information too.....

Along with weight bearing exercise, the other huge issue with osteopenia and osteoporosis is proper nutritional supplemenation. Again extended research clearly says for bone health we need to supplement with specific amounts of calcium, magnesium, boron, vitamin D3, and vitamin K2. Another supplement that has been shown to increase bone density is called Strontium. Here's an informative site on that....
http://www.drhoffman.com/page.cfm/447

Honestly, you are one of the people that falls into the category of the physician prescribing a Bisphosphonate like candy. This drug is NOT for you and it can have unwanted long term side effects even after you stop taking it because it remains in the bone for 10 years once you stop taking it.

There is a place for these drugs in certain individuals, but certainly not as a preventive measure in someone with osteopenia when proper nutritional supplementation and exercise can achieve far greater results in your overall well being.

I know it's difficult to get a doctor to step outside of their practicing box and become knowledgable about other non pharmaceutical ideas....... but it is imperative that we insist our doctors become better informed about what they are prescribing. In the meantime, seeking an Integrative physician (IAOMT website may be helpful) is perhaps the best option we have as the mainstream docs slowly catch on.

Thanks for your post.......... I think there will be many others who can relate to it!

Bryanna



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Originally Posted by ewizabeth View Post
I'm taking Fortical, a nasal mist similar to Boniva or the others. I see my PCP on Wednesday so I'm going to ask him about this. I'll go off this med if the risk is so high. I have osteopenia and if I have to I'll exercise each day to get off this medicine.
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Old 02-03-2009, 07:11 AM #6
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Hi Shelley,

I am so sorry about your Aunt. I see and hear these stories every day and it is so incredibly sad. These drugs are like throwing fuel on a burning fire in people who already have compromised immune systems caused by the drugs used to treat their cancer. The end result is usually disastrous and unrepairable.

Most likely your Aunt literally has no jawbone left and the osteonecrosis is still lingering in her skeletal structure of what use to be her jawbone. This is incredibly invasive and it is often impossible to cure. This condition is physically deforming and eating can be nearly impossible. Not to mention the chronic inflammation that continues to weaken her immune system. What a shame........ I am so sorry :-(

Thank you for posting this...........

Bryanna



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Originally Posted by Shelley View Post
Amen Byranna!

My aunt who has had breast and bone cancer for 10 years now took one of these and ended up with osteonecrosis and had to have all her teeth removed and now live with no teeth or detures.
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Old 02-03-2009, 07:37 AM #7
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Hi DM,

I hear you! It is confusing and very scary to see that your osteo is getting worse and here you are taking these drugs that can have ill affects on your health for years to come! Has you doctor discussed nutritional supplementation with you? Please read my post to ewizabeth.

All of these drugs carry the same potential side effects and they all linger in the skeletal system for at least 10 years. The IV route of transmission means the delivery of the drug can be directly into the blood stream and pass the digestive tract which means it is the most potent form of the drug. This route of transmission is well known to have serious side effects on the jawbone. Please seek information on alternative methods before you enter into another phase of these meds. I know it is difficult to know the right thing to do....... but please explore your options to the best of your ability.

Thanks for posting your situation....... let us know what you decide to do.

Bryanna


Quote:
Originally Posted by DM View Post
Hey Bryanna! Thanks for posting this. I've done so much research on Osteo drugs, my head is literally spinning. I just finished 16 months of Boniva injections every 3 months and my T scores were noticably worse on my last Dexascan. I am so disheartened, but am thinking of the Reclast once a yr IV. My Dr wants me to do the daily Forteo injections, but I'm not too pleased w/what I'm reading about that either. It's scary when your'e trying to treat a disease and end up w/another one! I'm very angry about these Osteo meds!!

Thanks again!
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Old 02-04-2009, 02:30 PM #8
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Hi Bryanna,

I saw my PCP today for my bi-annual checkup. He said to discontinue the Fortical and keep taking calcium and vitamin D and exercise. I need to get a regular bone scan also.

My brother in law had sent me some info about this last week so it was already at the back of my mind. Plus, after my shower my nose bleeds and that concerns me too.

As long as I can do my gardening in the spring, summer and fall I think my bones should be ok.

Thanks for your help. When I mentioned jaw necrosis to my PCP, he didn't argue at all and said to go ahead and stop the medicine. I had a good checkup though and this won't necessarily be the right thing for everybody else to do. Since mine was only osteopenia it seems like the right decision as you noted.

Quote:
Originally Posted by Bryanna View Post
Hi ewizabeth,

According to the extended research, there is no reason why someone who has osteopenia should be taking a Bisphosphonate. There are other ways to treat your condition that would benefit your long term health and increase your bone density.

First of all, your hormones should be checked to see what your imbalances are so they can be adjusted. Hormones play a huge role in our bone health! The most efficient way to test hormone levels are via saliva testing because this method tests the unbound hormones that are circulating in the bloodstream. Serum hormone tests measure the hormones that have already been utilized which is irrelvant. See ZRT labs website for information. Once the results are known, then a compounding pharmacy can make a formula of hormone(s) that is best suited for your individual needs. These hormones are called Biological or Natural Hormone Replacement Therapy. They can be be made in a cream, a gel, oral pills, sublingual drops, patches......etc. They are very different than synthetic hormones and do not cause the unwanted side effects or increase the risk of cancer. The body accepts these type of hormones so readily that only minute amounts need to be taken. Of course the saliva testing should be repeated periodoically so the dosages can be adjusted accordingly. AND of course you need a practitioner to order the hormones! Women's International Pharmacy has a list of practitioners that they will send out in the mail. You could visit their website for information too.....

Along with weight bearing exercise, the other huge issue with osteopenia and osteoporosis is proper nutritional supplemenation. Again extended research clearly says for bone health we need to supplement with specific amounts of calcium, magnesium, boron, vitamin D3, and vitamin K2. Another supplement that has been shown to increase bone density is called Strontium. Here's an informative site on that....
http://www.drhoffman.com/page.cfm/447

Honestly, you are one of the people that falls into the category of the physician prescribing a Bisphosphonate like candy. This drug is NOT for you and it can have unwanted long term side effects even after you stop taking it because it remains in the bone for 10 years once you stop taking it.

There is a place for these drugs in certain individuals, but certainly not as a preventive measure in someone with osteopenia when proper nutritional supplementation and exercise can achieve far greater results in your overall well being.

I know it's difficult to get a doctor to step outside of their practicing box and become knowledgable about other non pharmaceutical ideas....... but it is imperative that we insist our doctors become better informed about what they are prescribing. In the meantime, seeking an Integrative physician (IAOMT website may be helpful) is perhaps the best option we have as the mainstream docs slowly catch on.

Thanks for your post.......... I think there will be many others who can relate to it!

Bryanna
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Turn Left at the next election.
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Old 02-04-2009, 07:37 PM #9
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Hi ewizabeth,

I'm much relieved for you......... :-))

I do however hope that you look into the other things that I mentioned. Osteopenia can progress quickly into osteoporosis if there is an imbalance of hormones and/or nutritional support. It can also be stopped in it's tracks with a little alteration in lifestyle and when the imbalances are corrected!!

Thanks for sharing your story with us....... please keep us posted on how you are doing!

Bryanna



Quote:
=ewizabeth;460078]Hi Bryanna,

I saw my PCP today for my bi-annual checkup. He said to discontinue the Fortical and keep taking calcium and vitamin D and exercise. I need to get a regular bone scan also.

My brother in law had sent me some info about this last week so it was already at the back of my mind. Plus, after my shower my nose bleeds and that concerns me too.

As long as I can do my gardening in the spring, summer and fall I think my bones should be ok.

Thanks for your help. When I mentioned jaw necrosis to my PCP, he didn't argue at all and said to go ahead and stop the medicine. I had a good checkup though and this won't necessarily be the right thing for everybody else to do. Since mine was only osteopenia it seems like the right decision as you noted.

Last edited by Curious; 02-04-2009 at 08:32 PM. Reason: fixed quote
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Old 02-04-2009, 08:28 PM #10
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I think a lot of docs are going to quietly back off these meds and hope clients don't develop osteonecrosis even though the information has been out there for a while. But hey if they dont push drugs they dont get their cut. I bet they will all be worried that some patients will sue.
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