Do you use probiotics at all?

Not that it always goes hand in hand, but there is an increased association between H. Pylori and Celiac Disease. It is one of the chicken egg scenarios. H. pylori can damage the gut leading to increased risk of gluten and other food sensitivities (due to 'leaky gut'). Also, people with Celiac Disease have gut damage and immune system problems leaving them more susceptible to h. pylori, yeast overgrowth, etc.

Karen (now Zonulin) on OBT GS/CD has a lot of info on h. pylori ... it took her a long time to figure her son's problems out (he had h. pylori, too)... it was a number of things that needed to be corrected.. it often is.

Cara

Thank you, Cara. Very much!

Can I ask you another question?

You seem to be somewhat knowledgeable about all this. Have you ever seen or heard of a situation where celiac disease or h. pylori led to a single, great, very localized pain in the abdomen? One that can expand and contract, but never seems to move or totally fade, even briefly?

Idealist
my son had exactly what you are describing and we went thru a range of misdx (over a year!!!) till this summer a colonoscopy revealed he had Crohn's Disease. We have started a natural treatment program for it( specific anti-inflammatory, anti-spasmodic and healing supplements plus special diet) and things are sooooo much better.
However, if you had exploratory surgery (colonoscopy?) thay would surely have detected if it was Crohn's/Colitis etc:confused:

I do know that yeast infection of the GIT (candida albicans) can sometimes also cause persistant pain and IBS symptoms



Cara: Dont know if you have heard of a natural treatment for H pylori called Mastic gum.
The Gum Mastica eradicates the bacteria, while using it with Slippery Elm & L-Glutamine soothes & coats the ulcerated areas, and DGL-liquorice root heals the erosion

Left sided pain?

We had one member, bikerblue/Tami, who struggled with one sided severe pain in her left abdomen, but as I remember it was rather high...like under her rib cage. I remember a couple of others who had significant pain. Some swore to a 'non-pointy' food diet :). Sounds silly, but limiting food to soft food easy on the gut for a long time can really help some people.

Sometimes I really wish we had the history to go back on. I'm sure I could find you some good helpful threads. Although bikerblue had some improvement on a gluten free diet, this pain did not subside quickly with a gluten free diet, but I think eventually (and I think we are talking about years) that pain improved. I think she had to give up corn, too. And I'm sure there were other things she did.

Because not everyone on the gs/cd forum ends up with celiac disease, or even gluten sensitivity, we do talk about many other things besides food intolerance and often brainstorm other possibilities. Ways of healing the gut, other things to try.

Come hang out with us a while on GS/CD and maybe there will be something you haven't thought of or haven't tried yet. I can think of a few members who might have something to offer, and maybe someone will even know where to find bikerblue again to ask her about her left sided pain. Last I remember she was finally doing better and back to long distance bike riding, something she had given up for years. I know she suffered depression as well, as have many others on our forum. I think EreBear's brother and son dealt with some very significant pain resulting from celiac disease.

I know it may seem like grasping at straws, but I've seen so many people eventually make progress by just exploring possibilities and trying things that you can do on your own... in addition to what your doctors can do for you.

Anyway, I think you need to keep pushing on why the weight loss, abdominal pain, and IBS symptoms. Maybe a new doctor is in order who will take a fresh look.

Cara

Cara: Dont know if you have heard of a natural treatment for H pylori called Mastic gum.
The Gum Mastica eradicates the bacteria, while using it with Slippery Elm & L-Glutamine soothes & coats the ulcerated areas, and DGL-liquorice root heals the erosion[/quote]

Thanks, Chemar. You know, I had heard of a natural treatment for h.pylori, but I couldn't have remembered what. My brain has definitely reached mass capacity on most of these things. I know Slippery Elm is supposed to be good for the gut and the other things you mention as well. I've known many people who cross through our forum who have had good success with various things like this. Thanks for mentioning. I will know who to ask next time it comes up...lol. I'm a little better at remembering who knows what...lol... and where to look for things...rather than the actual things.

I've also heard some people swear by aloe vera juice for healing the gut.

Cara