NeuroTalk Support Groups - baby newly diagnosed with type one

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- Diabetes / Insulin Resistance / Metabolic Syndrome (https://www.neurotalk.org/diabetes-insulin-resistance-metabolic-syndrome/)

- - baby newly diagnosed with type one (https://www.neurotalk.org/diabetes-insulin-resistance-metabolic-syndrome/243565-baby-newly-diagnosed-type.html)

At home meters are not accurate below 50 and above 250 or so.

Ever hear about Munchausen by proxy? I suggest that you back away from these people and leave them to the specialists.

And do NOT tell them anything more about it other than to
see the doctors.

Quote:

Originally Posted by mrsD (Post 1244946)

I hear you. (re the Munchausen by proxy). But the grandma is a friend of mine. She has absolutely no clue how severe diabetes is. She always says "My cousin is a research scientist and we are waiting for a cure. It will come eventually". We all agree because this is all she can deal with now. The actual mother of the baby? Well, don't know what else there is to say.

I don't offer any other comments other than when I'm asked an opinion (for example "Why does this happen, etc." I simply answer "Diabetes is very complicated, it's different for everyone and there are no simple answers"

That's the best I (or anyone) could tell them. The mom does have a team and she always doesn't share (with her mom), what is going on.

Personally, I see real trouble down the road for this kid. How sad.

Mel
P.S. Thanks to all of you for your input. The first thing that leaped into my mind is "If there is a device that will eliminate spikes, you use that device" They are not using that device. Nuff said.

Melody, I agree with mrsD.

You could suggest to the grandmother that the child gets referred to a specialist endocrinologist, who would be able to do a detailed investigation (but don't do anything other than that).

Quote:

Originally Posted by kiwi33 (Post 1244975)

Hi. She has a team consisting of endocrinologists. The grandmother suggests about the Omnipod but obviously can't make her own daughter use this on the baby.

I'm curious. Why the investigation scenario? The team did a thorough questioning when the baby was first brought in. The mom had to tell them every single thing about her pregnancy and everything that happened from day one. (found this out today). I just listen when the people talk. I do NOT offer any opinions other than "listen to the doctors".

Thanks much

Melody
P.S. I know what munchausen by proxy is. Scary even to think about it.