[southie]

Here I am ... I haven't vanished from the
face of this planet, although the space station
trip does sound good...





Nonetheless, the good news is - it had taken me
awhile to become adjusted to Clonazepam
(generic for Klonopin) at 4 mg (1 mg Q.I.D or
x 4) - and I haven't had any T/C's, CP's, or
SP's - and with the Web-Cam ~ it confirmed it
with the captures even more so with the close
up shot of the Atypical Absence (I think) before
the meds were increased. I learned I have
Myos (Myoclonics).

Gee - I must have just about every epilepsies
there is in the text book!



Moreover, my Neuro when I questioned him
in reference to surgery ---> response was
same as it were with level 4's - "No"; when
I had "sorta begged" in a "kinda" whiny voice
if these would go away, and his response was
"I wished".



His response was almost like he didn't want to
answer those questions. But he did imply that
I would have episodes now and then as I have
triggers - unfortunately, had several events
which were caused by those triggers; meds
isn't a "cure" - but at least, HEY - put it this way,
they are working!

But the only thing here is the waiting game of
"how the ship will hold". Considering the years
I've been on Zonegran and Clonazepam at this
level - I ought to hold for a long time at this
range...

In addition, like my mom says, "don't count
your chickens before they hatch".

*sigh*

Sometimes "Moms" talk too much - Huh?



(I know I do, and I'm a Mom too)

[Porkette]

Hi Southie,
It's great to see you back! I'm sorry I haven't sent you a message but since school started up again I have been on the go.
You sound just like me I have had absence, complex partial, simple partial, as well as clonic sz. I found that when I went through my change is when the sz. got worse. I just started taking keppra in August and it has really helped me a lot. Years ago I took klonipin and that didn't help me at all.
As I've mentioned to you before you might want to get a DNA blood test done this will show what AED's are the best for you with the least side effects. In regards to having surgery done get a 2nd opinion that's what I did and I'm greatful that I did because this Dr. knew what he was doing and wasn't there just for the money.
You take care and May God Bless You!

Sue

[southie]

I believe I've already posted that DNA/Genetic info
somewhere in NT; I have mitochondrial as well as
progressive neurological issues here, so we are
already aware of all of these things.

And you are correct, seizures can change for:
1) for better
2) for worse
3) remain unchanged
4) dissolve
5) return (like many say "outta nowhere")

Going through change of life doesn't always apply,
but can be a factor if hormones have an impact;
hence the need more more research and studies
for Woman's Issues - since many of "us" girls,
teens, and woman are so vast and varied, the
need is great for research and study in this area:
from hormones to you-name-it.

Stigma still unfortunately "reigns" in the Woman's
Issues and needs to be given the "full boot" out of
Neuroscience / Psychiatry - and be given a "clean
boot" (am I sounding a little 'geeky' here)?



It factual, no if's, and's or butts about it - we need
a good sized Ram to butt the old studies way out
into the "lost city of Atlantis" to remain there ....
permanently! And come up with new current studies,
cases, researches, thereon ...

That is just my own humble 4 cents (due to inflation
and unemployment and ...) - my *sic* humor.

[Darlene]

Southie good to see you back.

I ready didn't have much trouble with the change. I had a hysterectomy back when I was around forty and was started on estrogen. Then again my OB told me because of the surgery I wouldn't go through the change.

Again welcome back Southie.