NeuroTalk Support Groups - Epilespy or something else?

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- - Epilespy or something else? (https://www.neurotalk.org/epilepsy/106472-epilespy-else.html)

Hi again JC,
I've been on the B6 it didn't help the sz's. I still sleepwalk, have done since I could walk, my parents would find me outside the house even though I couldn't reach the door lock me being 2'6" and the lock being 5' off the ground (none of us ever could work that out).

Hi Ijp

It's madenning isn't it how they are right in your ears? I've noticed another one over the last few days. A clicking in my right ear. Not in the left. it is a low clicking sound as if there is a rattle in my ear.

I need a good sleep and a good neuro...not sure which one I need first

permanent headaches

Hi RhiannonsMoon,

I'm replying to your original post. I was diagnosed with TLE in September of this past year, after ten years of being treated for anxiety, depression, sleep disorders. I haven't experienced auditiory hallucinations of the musical type, but I seem to have a keen ear more than ever having the ability to hear music and all its parts in clear replay in my mind as well as reproducing it on guitar or keyboard. I do have the permanent headache, it is on the left side of my head and it seems to have a large impact on my moods and ability to think. I am now 26 and it seems I've had this headache since I was 14-15 years old.
What do your headaches feel like and how is your ability to think clearly affected by your TLE?

Quote:

Originally Posted by RhiannonsMoon (Post 581843)

Hi Everyone,

I havent been here in a while. Had all sorts of upheavals & diagnoses with major depressive disorder, agoraphobia, panic & generalised anxiety disorder.

My meds have been changing to hopefully treat & control those things, but I'm having a real problem with what I think may be epilepsy related symptoms, but not sure.

Any insight, advice and input is gratefully received.

I am hearing music in my left ear. Classical, opera, gregorian chant type stuff. When I was re-diagnosed with E I was given an auditory test and was told I have 30% loss of hearing on my right side.

This coupled with tinitus is driving me mad. I also speak different languages in my mind, and I can understand what I am saying. This is freaky. French, German, Italian, Greek and Gaelic. Only a few words at any given time, but it interlopes into my thoughts several times a day without warning.

Before I go to the GP to get referred to a new Neuro, I would appreciate reading about anyones experiences in this or a similar vein. If I can tell her "Hey others have had this", then it seems much less freaky.

I recently had my meds changed to Cymbalta (this was starting to happen before that though), and I was wondering if there could be something in Cymbalta that is interfering with my epilepsy meds?

I've also got a low grade permanent headache, not sure whether that is the cymbalta or the epilepsy either.

Will be grateful for all replies,

Thanks,
Rhiannon

All us T.L.E need to pay more attention to the spiritual aspects of the illness/gift. Speaking in differant languages may only be you receiving spirits that dont speak English. I've seen this before when someone I met was speaking Aramaic or some such ancient language. Did you ever consider that your name came from Rhiana the godess of horses? Do you have a thing about horses by any chance? The Dove, Alan Donald Kennedy