Hi Everyone,

I havent been here in a while. Had all sorts of upheavals & diagnoses with major depressive disorder, agoraphobia, panic & generalised anxiety disorder.

My meds have been changing to hopefully treat & control those things, but I'm having a real problem with what I think may be epilepsy related symptoms, but not sure.

Any insight, advice and input is gratefully received.

I am hearing music in my left ear. Classical, opera, gregorian chant type stuff. When I was re-diagnosed with E I was given an auditory test and was told I have 30% loss of hearing on my right side.

This coupled with tinitus is driving me mad. I also speak different languages in my mind, and I can understand what I am saying. This is freaky. French, German, Italian, Greek and Gaelic. Only a few words at any given time, but it interlopes into my thoughts several times a day without warning.

Before I go to the GP to get referred to a new Neuro, I would appreciate reading about anyones experiences in this or a similar vein. If I can tell her "Hey others have had this", then it seems much less freaky.

I recently had my meds changed to Cymbalta (this was starting to happen before that though), and I was wondering if there could be something in Cymbalta that is interfering with my epilepsy meds?

I've also got a low grade permanent headache, not sure whether that is the cymbalta or the epilepsy either.

Will be grateful for all replies,

Thanks,
Rhiannon

Welcome back Rhiannon.

Hey R. I have actualy heard of this befor, where people could speak multi diffrent languages without ever even learning it. It has nothing to do with epilepsy though. I forget the name of it, its audio somthn, but im sure you can find it on the internet.

Hi Rhianoon,
I'm no neuro but after 37 yrs. of seizures it sounds like you are having audio sz. and that's when you hear sounds that are not really there it can happen to people who have complex partial sz. like I have. Often before the sz. starts I get a nervous feeling in my stomach and sometimes I will hear one word repeated over and over again. My best advice to you is to go to an Epilepsy Center and see an Epileptologist, Dr. specialzing in epilepsy.
Take my word headaches, depression and anxiety are all part of epilepsy. You need to have a e.e.g., MRI, CAT Scan, and try to start vitamin B12 1000 mcg once a day. Also take note if you have more headaches and possible sz. when there' s low pressure in the weather. Many people who have epilepsy are often effected by the weather and a low pressure will trigger sz. for many people. I've found taking mysoline and Diamox the best help for my complex partial sz. which are the hardest type of sz. to control. Here's wishing you well and May God Bless You!

Sue

Oh Sue you may not be a neuro but you sure are an earth angel!

I haven't seen a neuro for far too long. I've had the mri scans & eeg, all show epilepsy, which was lucky really as I'm told that often it doesn't show up on most tests.

I was taking B12 but it was interfering with the warfarin (I take 13mg daily). So rather than reduce the warfarin the doc siad to stop it. Though now I'm seeing a new doc she may reduce the warfarin (which I think is poison).

Thank you so very much Sue, you have no idea how much you have helped me. I honestly thought I was going insane. I'm going to print up your reply and take it with me to the gp and the neuro.

I'm very sensitive to drugs and am allergic to many epilepsy meds. I can't remember all I've had so far but have reacted to all but tegretol & Neurontin. But the neurontin dose was reduced a few months before this started to happen.

At first I thought I was just taking "music" out of every day noises. But when it escalated I knew it was more than that. I've been quiet about it because with the depression and anxiety I've been worried that the pdoc would toss me in a lockdown ward.

Sue you really are an angel, thank you so very very much

Oh I'm so sorry! I meant to thank everyone who responded. It feels so much better not feeling alone and lost.

Some of the "seizures" are so strange that most people don't even think they're seizures at all. So having here to come to does make a difference.

So a huge thanks to everyone

(((())))
Rhiannon

Hi Rhianoon,
I'm glad to of been of help to you! You mentioned that you have taken the drugs tegretol and neurontin. I've taken both of those drugs also. It's been proven that Neurontin can cause a persons seizures (sz.) to get worse in many cases so please be careful. I was on neurontin and it caused me to have absence status seizures where it led to more brain damage. The drug company that makes neurontin just had a 3.2 billion dollar lawsuit and this is the 4h lawsuit with this co. Tegretol worked good for me for many yrs. but then I started to break out with a rash. Stay away from Trileptal because Trileptal is like a 2nd cousin the tegretol they are so similar. I've learned over the yrs. to speak with my pharmacist they know much more about the drugs than Drs. do.
One other thing you might want to do is to take note if when you listen to music or hear certain sounds on tv or even a persons voice take note if it puts you into a sz. Sometimes a person is sensitive to sounds which can trigger sz. Here's wishing you well and May God Bless You!

Sue

Thanks Sue,

I am at present trying to get my gp to try me on Trazodone. That is apparently for everything but making breakfast in bed. So I'd like to give it a try to see how it goes.

I would like to stop the neurontin and my previous gp wanted to get me off tegretol, but that is the only thing that has worked without allergic reaction so far. But I'm happy to keep trying until we find one that suits me.

Funny you mention the sounds. We had a guy here yesterday installing a satellite dish and the drill was awful and put me out for the count. Apparently my partner started looking at me as soon as it started because he said he has seen things like that send me out before. I wasn't aware of it.

I slept for a fair while afterwards, and and still slept til 3am as usual so that was the best sleep I've had in a while. Got a rotter of a headache today though. And I feel a bit "spacey". All this stuff is tiring and draining,

Anyhoo thanks for your help. I'm very grateful, if you can add anything at any time I'd appreciate it,

Rhiannon

[jUST TO REITERATE WHAT i SAID ON ANOTHER POST,I dont have languages in my head but I have songs from my teenho0od and Christmas songs. They get so bad I sing them out loud with the addition of the last word spoken to me.I also cant hear awful news about children because it takes over my brain for days as I twist it into something even worse.on my other posts I listed some but not all recent symptoms.Also,Im completely alone family too busy have one friend left who takes me out occasionally but Im usually stuck here with 3 young kids and a boyfriend I dont share everything with him because my symptoms are not of this world.Thankseds have been changing to hopefully treat & control those things, but I'm having a real problem with what I think may be epilepsy related symptoms, but not sure.

Any insight, advice and input is gratefully received.

I am hearing music in my left ear. Classical, opera, gregorian chant type stuff. When I was re-diagnosed with E I was given an auditory test and was told I have 30% loss of hearing on my right side.

This coupled with tinitus is driving me mad. I also speak different languages in my mind, and I can understand what I am saying. This is freaky. French, German, Italian, Greek and Gaelic. Only a few words at any given time, but it interlopes into my thoughts several times a day without warning.

Before I go to the GP to get referred to a new Neuro, I would appreciate reading about anyones experiences in this or a similar vein. If I can tell her "Hey others have had this", then it seems much less freaky.

I recently had my meds changed to Cymbalta (this was starting to happen before that though), and I was wondering if there could be something in Cymbalta that is interfering with my epilepsy meds?

I've also got a low grade permanent headache, not sure whether that is the cymbalta or the epilepsy either.

Will be grateful for all replies,

Thanks,
Rhiannon[/QUOTE]

sorry,think i butchered your post-Im computer illiterate.Next time I wont try to delete a misspelled word!