what do i do??
 

My son has been discribing the same symptoms for a few years now.I have been to various doctors and he had an epalepsy test at the hospital.This came back fine.Because he was on medication we stoped it because i believed this may have had something to do with his epposodes.The doctors claimed it couls be stress as my parents had moved away and we went to see a counciler.(sorry Dyslexic).This was useless.
Recently the epposodes have been coming back in increased frequency.He remembers everything but becomes increadibly scared.He describes as being there but not.Like everyones voices become distant and he is removed.These usually only last for approx 10 seconds but he claims the last time it lasted about a min or so.
He has had 2 frightning epposodes in 2 days now.Can hyperventilation or computers cause this?What should i do.I have been recording the epposodes.
any advice would be great..
suzanne

Hi Suzanne,

Welcome to the forum! I'm sorry to hear that your son is having some of the same symptoms as a person having a seizure. Often a Dr. will order tests to be done and nothing will show up stating that a person has epilepsy and this us because the brain damage or scar tissue is to deep in the brain for any of the tests to show.
My advice to you is to have you son see an Epileptologist (Dr. specialzing in epilepsy) and be sure to take him to an Epilepsy Center which are usually at University Hospitals. Speak to your sons family Dr. to be referred to a Epileptologist. Stress, lack of sleep, hormones changing, (puberty), and to much starch food and sweets can trigger seizures for a person.
Your son could be photosensitive which means certain colors can trigger seizures. Strobe lights are one thing that can trigger seizures for many people. Your son should have a special e.e.g. done where the technician will flash different color lights one at at time by doing this they will be able to find out if certain colors are triggering seizures. I found out that florescent green, amber, and bright white are the colors that trigger seizures for me.
Get a calander and write down each time your son has any possilbe seizure put down the time that it happened along with a discription of the seizure. Also write down if your son is sick with a cold or virus, and if there's a low pressure in the weather. By doing this the Dr. may see a pattern in your sons seizures as to what time of day/night he has any seizures or what days of the month. A low pressure in the weather and being sick can often cause seizures for a person. You might want to put your son on Vitamin B12 and get him on the ketogenic diet which is similar to the atkins diet but more strict the ketogenic diet help build ketones in a persons body which will reduce if not stop a persons seizures. You can buy the book titled " The Epilepsy Diet Treatment" by Dr. John Freeman this book explains how the diet works and how it stops seizures. The diet has been around since 1927 and has worked great for kids and many adults. I wish you and your son the best of luck. May God Bless You Both!

Sue

Great to meet you!!
 

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help. I agree with what sue has told you. The Epileptologist that I saw help me a great deal. I have lived with epilepsy ever since I was 10, this is the first time I am controlled, so check it out.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene :hug: