NeuroTalk Support Groups - Music-triggered gelastic seizures connected to sound sensitivity?

Musicogenic is related to REFLEX or GELASTIC
Seizures / Epilepsy "Family". YES, one can hear
sound - to be more specific, they come in Hertz
(Hz) and Frequencies.

Hertz - pitch
Frequencies - depth

One can be tripped off at a specific Hertz at a specific
Frequency or specific Hz and frequencies; while remainder
being of normalcy. An Audiologist working with a Neurologist
or Epileptologist will be able to work together in this area
to determine the specific range of field.

The seizure(s) itself varies from individual to individual, plus
how one obtained it also varies from individual to individual.

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A little bit about myself, I have this very exact specific
nature you are amplifying in this field, being diagnosed at
a very, very young age (before 3), then taken to a major
University Hospital (they did not have Level 4 Hospitals
back in my days) - it was then determine that was the
cause and reason. However, we had to return back again
for the same test performance; to see if it repeats itself
which it did, not only that it affirmed the conclusion that
I had mitochondrial - it was not until years later of what
type of mitochondrial I have, for that had been recently
found and everything have been aligned accordingly and
specifically. While what I have is excessively rare, for
added insult, due to differing variants and mutants, they
will not know until an autopsy is performed after my death.

Many others who experiences this, half of them were
genetic and others were virtually unknown with the guess
work of "high fevers" when they were a child according to
some from their family members - so it remains unknown.

Nonetheless, we all agree with one thing; it is annoying as
heck!

What is even worse is, it is a seizure itself before a seizure
manifests - not an Aura / Simple Partial; but there are a couple
individuals who experienced these when being exposed to a
pitch or frequency - which tripped them off.

Consider it the same thing of those who are photic (light
sensitivity) where strobes, flickering of lights, etc - would
trip them off into differing types of seizures.

Sometimes such seizures would even secondary generalize
while others it just a seizure and does not secondary
generalize at all.

Are they rare? NO, but it is uncommon, but not rare. I also
must add there it impacts both males and females equally,
and there is no nationality barriers either. Therefore, it can
effect anyone, anywhere, across this planet earth. One might
have it and under the false assumption that they are going
deaf or some have been misdiagnosed as a couple were, as
"tone deaf" until they saw a Neurologist and it showed up on
the EEG and Radiology scans and other tests were run.

Is Surgery necessary? YES and NO - depending on where it is
originating from, and to answer the other question: Why am
I being sent to an E.N.T. (Ear, Nose, Throat) Surgeon or
Specialist? The Surgeon will work together with the Neurologist
or Epileptologist and/or Neurosurgeon. As implied, it all depends
on where the problem is originating from. Some can be corrected,
some cannot.

The other question of "I hear things" but I am not seizing but
when I tell people what I hear they give me funny looks or think
I am a "nut case" ... No, you are not a nut-case - did you actually
"hear things", the answer is YES, but how? For example, you heard
classic music on the radio, only it was distorted, for a short span,
then it went away ... but no one was playing the radio (as it were
in my case). One would be able to hear odd, distorted, strange
noise, or even in some cases, repetitive noises - where they can
be misdiagnosed as tinnitus when it is not for it only lasted but for
a moment - a sure sign is, the headache that typically follows after
wards as well as the sudden development of light sensitivity, as
well as vertigo (dizziness), nausea with or without vomiting, other
signs, especially if one had experienced a "hard hit" would be:
staggering gait (walk), slurred speech, disorientation, blanking out
or zoned out or spaced out, the feeling of being there but not there
but somewhere in outer space, sensitivity to light, headache, and
others not listed.

If such arises - you should speak to the Physician and to the
Neurologist / Epileptologist. Make a log of this, every time you
remember having such occurrences; if you are aware or unaware
and/or if there are any witnesses, what were you doing (your
behavior) - for this logs would help tremendously.

If you are into music, knowing the musical keys, and specific keys
such as octave Eb always trips you off, then so note it. Or if
deep Bass in G, F, and A sends you into a flurries when your buddy
plays that electric guitar and cranks the bass up ... WRITE IT DOWN!
Even if a Violin, Piccolo, Oboe - sends you up the wall and you do
not know why (it would the the pitch and frequencies).

As for "hearing in your brain", such as electrical cracking, zapping,
so forth - note it down.

You are not crazy or losing you mind at all; it really is there, they have
captured these on EEG's on my end; even though I am profoundly
deaf now (115-120 dB (decibels)... cannot even hear a Boeing Jet
Engine) - yet, I can hear these obnoxious and annoying things
once in a blue moon for my AEDS are working - for when I was
young, I was not on AEDS, so I suffered through it much.

NOTE: It is TRUE that sometimes this can be a result of a side
effect of an AED (Anti-Epileptic Drug) that one may be taking
if one is on it.