Hi Footprints (or anyone else for that matter), I hope you are still out there. I had oculogyric crisis in Sept. of 06. after a D&C for a miscarriage I had. I was given anesthesia and after awakening from the short surgery- my jaw was locked and my teeth clenched. The recovery room discounted my symptoms and released me. Then when I got in the car, my eyes started rolling back and kept going upwards like you described. (VERY VERY painful.) Also my neck and head kept going back. Finally after about 8 hours of suffering- I was brought back into the emergency room. I was terrified and begging my doctor to knock me out. Then I asked him if to figure out what was wrong with me (through my clenched teeth) and what had happened and if he couldnt make me normal again to not make me "come back" (at the time I thought it was brain damage or a stroke of some kind). I was literally resigned on dying b/c I thought they seriously screwed me up. I had NEVER EVER felt like that or ever wanted to die in my life.

Anyway, the reason I am even on here is to search for someone else who had this. The reason being is because ever since that day (6 months ago) I have had headaches, dizziness, hot flush-like feelings in my face and bad nausea. I have been to a gazillion doctors and all my bloodwork came back normal. Now Ive been diagnosed with anxiety/depression. I have NEVER had any issues with anxiety or physical symptoms before this. Obviously- I have developed some sort of depression in the last few months (mostly feeling sorry for myself type of depression because I am physically sick every single day and its affected my life.) I was wondering if ANYONE could tell me if theyve ever heard of a reaction like this with such long term effects. I am at my wits end and have exhausted all types of doctors and specialists. They can tell me what is wrong. I reluctantly went on Lexapro (an antidepressant) about 6 weeks ago and it hasnt done a thing to alleviate my symptoms. This just confirms my belief that it is not anxiety/depression. Anyone???? Please help Thanks so much, Maria.

Hi to both of you that have had issues with this problem. I'm sincerely hoping the information I am about to give can be helpful to you all. My fiancée was in a coma for 2 weeks in December of 2011 believed to be caused by a carbon monoxide leak. Which after doing some research can be a cause of different types of Dystonia. She was diagnosed with ARDS(Acute Respiratory Distress Syndrome) Upon coming out of the coma she was suffering from ICU Psycosis. The proper way to treat that is to allow time for the synapses within the brain to start refiring & connect back to reality. She was treated with anti-psycotics(Haldol & Reglin). We believe this could have been the cause of her onset of Dystonia(particularly Oculargyric Crisis). She was given a recovery time of 12-24 months. When she has an episode it seems to be brought on by a possible number of things including fatigue, stress, among other things. Common treatments Ive researched are Benadryl & some Benzos. Although Ive also read that the Benzos can bring on an episode. One medication in particular that i've seen no information on or rwccomendations for it being used as a treatment is Hydrocodone. I would not have believed it if I had not seen firsthand the honestly amazing effects it had in not only stopping the episode once it was occuring, but I have seen it keep the effects from even occuring. Based on the research I've done on Dystonia & Hydrocodone I believe the reason it helps is due to Hydrocodone being a blood thinner. I am by no means a trained physician or anything of the sort. What causes the onset from what I've read is swelling in that particular part of the brain. Other blood thinners may be a possible help or treatment, but there is so little currently known about this disorder. If you all are still having problems or have gathered any new information or would just like to talk to someone that has been through the same pain that you have please contact us. If anyone reading this could give me any advice I would greatly appreciate it.