Epilepsy For support and discussion about Epilepsy and Seizure Disorders.


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Old 09-20-2006, 03:31 PM #1
BECKY BECKY is offline
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Question Single parent of a child with Intracable epilepsy

Was hoping that there might be someone out there with a similar situation as ours. Need info on options/help for single parents trying to STAY gainfully employed and be there for her My daughter is 8 years old and has struggled with seizures all of her life . She recently had th VNS implanted and we have seen some progress, however she still breaksthrough episodes that prevent me from working. I do not have any outside help from family or anyone else, any advice is much appreciated. thanks
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Old 09-20-2006, 04:52 PM #2
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Hugs to you and your little girl, Becky

You might try re-posting this on the child neurology forum, there are many parents there who have children with seizure disorders.
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Old 09-20-2006, 05:03 PM #3
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Hi Becky! Welcome!

I'm very sorry to hear about your daughter. What area are you from? If you'd like, I can do some searching for support groups in your area.

Best wishes to you.
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Old 09-20-2006, 07:24 PM #4
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Hi Becky
Welcome to the forum. I am glad you found us for support.
I am sorry your daughter is going thru this.

How long has she had the VNS?
What meds is she still on?
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Old 09-20-2006, 08:23 PM #5
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I would like to invite you to http://www.vnsmessageboard.com

We have over 600 members and a seperate parents forum.
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"If you are going through h e l l, keep going."
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Work like you don't need money, Love like you've never been hurt,
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Old 09-21-2006, 01:30 PM #6
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Hi,

I am a single parent and my daughter has intractible E as well. I would love to talk sometime.

Have you gotten FMLA? I would have lost my job a long time ago with out that protection.

You can follow the link to my daughters site, my email is to the right hand side of that page, I would love to hear from you.
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Old 09-24-2006, 06:52 PM #7
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Hi Becky

I'm Donna and I have a 15 year old that has had his VNS for 2 years.

We still deal with seizures, and he still is on 3 different medicines. He
has a paraprofessional at school, and we have to have someone with
him 24/7 so I can totally relate to what you are talking about.

I don't know what state your in but if you would like someone to talk to.
Email me at dmom3005@yahoo.com and I'll see if I can figure out someway
to help you. I am also a advocate in the state of Indiana, and have resources to help parents in other states if they need it. So if you are
having problems with the schools I might be able to help.

Have you looked into respite care.

Donna
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