My son had his first seizure (febrile) when he was fifteen months old. At 23 months he had 18 grand mals in a little over 36 hours. He had a few breakthroughs but his last grand mal was in 2001. He began to have atonic, especially with high fevers. In December of 2004 at age eight he was weened off the Depakote. As far as I know he's remained seizure free.

Today he came in and asked me if it is possible to smell things when you are asleep. I said, "well what did you smell?" He told me that he smelled flowers. I continued to question him by asking what he was dreaming about and he said that he didn't think he was dreaming. So I then asked him if he smelled anything else ever. He said he smells "gyms" all the time. I asked him to explain it better and he said "ya know like running and smelling in the gym." I didn't want to put words in his mouth so I stopped questioning him.

I've called his doctor (new since the move) and am worried right now. These are the same partial seizures that I have. Once I did have a pleasant olfactory seizure, but usually it's the burnt coffee or stinky shoe smell for me.

How worried should I be?

I'd hate to give you any advice when it comes to how worried you should be. So instead, I'd say to just speak with his doctor and kind of let things roll that way.

However, I'd like to say that I do hope eveything works out for the best and it is very good your son is able to communicate with you and help to get this resolved.

I wish you the best of luck!

I've got an appointment scheduled with the Pedi Epileptologist...11/15. I hate to wait that long. I just read that his Pedi Epi Doc from Houston has moved to Tennessee.

Oh my, that's a long time to wait. Do you have an insurance plan that allows you more freedom (to change doctors, go w/o referrals, etc.)?

I'd probably bug them a bit more for an earlier appointment, but I am impatient when it comes to those things. Maybe you could be asked to be put on their call list if someone cancels, too.

when i have homework due the next day and i left it at school
i always start to worry, but my mom asked me"what can your worrying do right now to help the cause", and even though it took me a long time to fully understand this, but now i know... if it is going to be a long time untill your opointment, then be a little concerened, but dont worry your self to a point of insanity(thats what i tend to do...lol)

hope this helped

What an unbearably LONG wait. It's so much different dealing with your own health problems than dealing with your children's. Definitely a new level of scary.

I hope you can get into a good doctor and get a favorable prognosis and treatment. Where in Houston are you? Wanna share some neuro recommendations? I'm in Champions (NW Houston)