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Old 07-30-2010, 08:04 PM #1
bunnyhugs bunnyhugs is offline
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Confused Seizure Aura? Medication side effect? Why can't I talk? New and Confused.

Hi Everyone,

I've been a lifelong sufferer of migraines (since I was 4 and I'm now 30). Back in 2003 I had a seizure after taking Imitrex (shot). I had been taking verapamil and then zonegran for the migraines. I begged the doctor to take me off zonegran and I had not been taking any medication for almost a year. Anyway, sorry, I got married this past May and ended up passing out and having two consecutive seizures the night before my wedding. The doc put me on Neurontin. One day I was 5 hours late taking Neurontin and ended up passing out and having another seizure. Both times this happened I had breakthrough bleeding. Both times it started out with a burning sensation in my stomach and then a sudden seasickness type feeling. The doc weaned me off Neurontin and I've been on Keppra for two weeks now. Almost daily I've been having episodes where I suddenly feel very weak and hungry even though my stomach is burning and the last thing I want to do is speak. (This happened with Neurontin and now with Keppra). It takes such an effort to speak. People tell me that they can tell there's something wrong because I'm speaking very quiet and very slow or not at all. Is this a side effect of the medication? Is this related to the seizures? Does this happen to anyone else? Thanks for any advice!
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Old 07-31-2010, 02:14 AM #2
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Darlene Darlene is offline
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Great to have you with us. You will find a great number of dear friends here to assist you as they are able.

I have had epilepsy since I was about 10, which is a great number of years ago (47 years). I have seen a good number of doctors in my time but the one I have now has been so helpful to me.

There is a great number of meds got there, but it takes a while to get into you system to assist you. After being had on Keppra for three months then it helped me out, also I am Lamital. In most every meds you will have reactions til your body get use to it. Yes back when I was having problems with the spells, afterwards I would be very quiet. Sometimes I would even lay down and take a nap after one. As for talking, I was forming my words in my mouth but could not get the words out of my mouth. I know was sounds weird, but is no other way I can think to say it.

So what I am saying is just be a little patient and let the medicine help, then again keep an eye on the bleeding. Has the doctor been informed of the bleeding?

We are always here to assist you as needed. You are in my thoughts and prayers.

Darlene
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Old 07-31-2010, 06:45 AM #3
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Hi bunnyhugs,

Welcome to the forum! I've taken both neurontin and Keppra and take my word these drugs can sometimes mess up a person terribly. When I was on neurontin it caused me to have status seizures where I would be out of it for 40 min. to 3 hrs. this lead to more brain damage. I finally found out that the drug can mess up a person really badly causing bleeding by lowering the blood platlet level and the drug co. making the drug was sued for over $210 million for the co. making the drug that can cause more seizures and brain damage. I got off the neurontin and had fewer seizures and then my Dr. put me on keppra last yr. in August and I've had over 100 more seizures since on this drug so I called the FDA and they sent me paper work on the drug and I found out the both the generic form and brand name of Keppra have been reported for increasing seizures for people. What you need to do is see an Epileptologist and have them do a DNA test on you to find out what drug will help you the most with the least side effects. This is what I had done and I'm taking Diamox, mysoline, to control my absence (petit mal), aura, and complex partial seizures. I've had epilepsy for 39 yrs. now I started having migraines and seizures when I was 10 yrs. old I also had brain surgery done to help reduce my seizures. You might want to start taking vitamin B 12 1000 mcg. once a day that has helped reduce my seizures greatly. Also stay away from nutra sweet because it will cause more electrical activity in the brain which can lead to seizures. Cell phones do the same thing and I was strictly told to stay away from them so I use a ham radio instead. If you stomach continues to bother you see a Gastro specialist, and in regards to your speach it could be the medication but I have a feeling that you might be having problems on the left side of your brain where your speech is. I wish you only the best and May God Bless You!

Sue
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Old 08-02-2010, 06:22 PM #4
mel239 mel239 is offline
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Quote:
Originally Posted by bunnyhugs View Post
Hi Everyone,

I've been a lifelong sufferer of migraines (since I was 4 and I'm now 30). Back in 2003 I had a seizure after taking Imitrex (shot). I had been taking verapamil and then zonegran for the migraines. I begged the doctor to take me off zonegran and I had not been taking any medication for almost a year. Anyway, sorry, I got married this past May and ended up passing out and having two consecutive seizures the night before my wedding. The doc put me on Neurontin. One day I was 5 hours late taking Neurontin and ended up passing out and having another seizure. Both times this happened I had breakthrough bleeding. Both times it started out with a burning sensation in my stomach and then a sudden seasickness type feeling. The doc weaned me off Neurontin and I've been on Keppra for two weeks now. Almost daily I've been having episodes where I suddenly feel very weak and hungry even though my stomach is burning and the last thing I want to do is speak. (This happened with Neurontin and now with Keppra). It takes such an effort to speak. People tell me that they can tell there's something wrong because I'm speaking very quiet and very slow or not at all. Is this a side effect of the medication? Is this related to the seizures? Does this happen to anyone else? Thanks for any advice!
My mom said I sounded drunk but trying to talk normal.Im on trileptal,went away after couple months
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