Epilepsy For support and discussion about Epilepsy and Seizure Disorders.


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Old 09-26-2006, 09:53 PM #11
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I hope you're feeling better soon, Sue!
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Old 09-27-2006, 01:11 AM #12
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glad you got an explanation, but surely do wish that there was nothing to explain.

((((sue))))
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Old 09-27-2006, 07:39 PM #13
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Hi Everyone,
I saw my GP today and was told that I have post concussive syndrome and thats' the reason why I get dizzy, have headaches, and blurry vision. The clinic called my GP and told him they felt I was faking a GM sz. That's when I told my GP why would I have 2 brain surgeries to reduce my sz. only to try and fake a GM sz.? My GP agreed with me that the clinic was a bunch of jerks and not to smart. He felt they said this so when I finish reporting them to the Medical Conduct Board they will have a leg to stand on but right now I have both my GP and my epi's nurse backing me up 100% not to mention a lawyer who I will be talking with soon.
Take care and May God Bless You!

Sue
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Old 09-28-2006, 06:28 AM #14
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Sue-

I am very distressed to read all of this. I hope you are doing better soon. And that those people at the clinic get roasted over an open fire!

It is horrible to see that even the medical community is so poorly educated about epilepsy. It is bad enough dealing with the general ignorance by a good deal of people, but it frustrates me more when doctors or nurses are ignorant about the condition. I don't expect experts, but I do expect them to know the general first-aid procedures for when someone is having a seizure and being able to recognize a GM.

Hugs to you...
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Old 09-28-2006, 06:08 PM #15
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Hi Everyone,
This evening I got a call from the administrator of the clinic telling me that they would cover for my ambulance and emergency room but only what my health ins. wouldn't cover which is 20%. I told the administrator that my health ins. isn't going to pay anything the clinic is and that they also have to pay me for my time off from work 1 1/2 days. The administrator told me" I will have to speak with the other administrators." That's when I spoke up and said: " You can't say a word about me without me being present remember the Private Policy Act!" He then got edgy when I told him he would be dealing with my lawyer so we will have to wait and see what happens. Thanks again for all your support and understanding. May God Bless You!

Sue
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Old 09-28-2006, 10:44 PM #16
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he sure must think you are a pushover. what a surprize.

the next time something like this happens to someone else they are going to be much more careful. you are making the world a safer place for all of us.
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Old 09-29-2006, 12:24 AM #17
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Sue, I can't believe that administrator!!
I'm so glad you're sticking up for yourself, sticking to your guns, and getting a lawyer involved right away.
All the best to you and good luck!!
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Old 09-29-2006, 08:21 AM #18
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I'm so sorry, Sue! Just managed to get back on here and this was the first thing that I read. Are you okay? I really could strangle some doctors.
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Old 09-29-2006, 05:38 PM #19
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Hi Folks,
I called my lawyers office today and I will know next week if he will take my case and go after the clinic administrator. The biggest problem is a lot of the lawyers I've spoken with tell my that my E. is a preigsting disease and that's why they won't take the case. I feel that's a bunch of you know what and they are discriminating myself as well as everyone else who has E. but take my word I won't back down and let people get away with cutting us down because we have E. Here's wishing all of you well and May God Bless You!

Sue
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Old 10-02-2006, 04:57 PM #20
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Hi Folks,
Just to update you the Clinics lawyer had a meeting today with the administrators and they are refusing to pay me for my time I lost from work, and they are only willing to pay my out of pocket expenses in regards to any medical bills that my health ins. doesn't cover. What burns me up is they had the meeting without me even being there so how am I to know what was said. I feel this should also be reported to EFA because they were stating all of this was my fault do to the fact I have had sz. for 34 yrs. but as I've said before I never had a TC until they pulled all of this garbage. Here's wishing all of you well and May God Bless You!

Sue
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