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-   -   24 Hour EEG results showed seizure activity! (https://www.neurotalk.org/epilepsy/1474-24-hour-eeg-results-seizure-activity.html)

vodpop 09-28-2006 08:10 PM

Interesting that it's changed lobes. Mine has always been temporal lobe so I can relate to that particular experience. Call it emotional. Roller coaster even. The spots seem to be getting better. Hopefully they will go away altogether.

How has this diagnosis affected your work? I notice your an LPN.. I know it's affected me with work in many ways I hadn't ever anticipated.

stef

Daisy9980 10-03-2006 06:18 PM

I have had some hard mornings after a grand mal seizure. I tell who ever I am working with for the day. If I have any areas of weakness like if my calfs are all still cramped, I will try not to do patient transfers/lifting. But so far so good for the most part. Thanks for checking back in. The neuro thinks nothing of my black spots..... but I do document and it switches eyes. I thought the switch from frontal lobe to temporal was strange, I would like ot have an office visit with the neuro . Hope you are doing well stef!

Daisy9980 10-03-2006 06:18 PM

And one more good thing is that I am always working in a healthcare facility so I figure I work in the best environment possible with E :)

Ellie 10-03-2006 07:18 PM

Quote:

Originally Posted by Daisy9980 (Post 15065)
Hey stef glad to hear that. I see spots too we should talk about that email me when you get a chance. Keep me updated

I am having a hard time really accepting this all. It all makes sense. But it has just jumped lobes frontal to temporal so that just bothered me a little. If anyone has any info to pass along that would be great :) Tracy

I had my recent EEG show something very similar (I posted in another thread). I decided, in good humor - to self diagnose and make up my own name.

Lobe Hopper Syndrome!

It's catchy, huh?! :o

Mine was in frontal, central temporal and now there, but also parietal. I am still rather confused on the whole 'lobe hopping' part, but I'll wait for my doctors call (and wait...and wait).

As mentioned, I'm kind of confused - but have a similar complication, so anytime you'd like to chat I'm free.

Hope you're feeling well!

-El

Daisy9980 10-03-2006 09:47 PM

Thanks alot El. If you find out anything let me know if you could. :)
I am going to do some research in my off time and see what is going on. I am thinking neurons can misfire anywhere, whenever they want. I love the name. Darn lobe hoppers. Take care Tracy

Ellie 10-03-2006 09:54 PM

Do you have any messengers you use? I have lots of links, if you want to 'work' together! Maybe we could team up and beat down the lobe hoppers!! :D


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