Just found out having simple partial seizures

Friedbrain · 07-11-2011, 01:56 PM

{{hugs}} I've btdt with having young children and experiencing my first seizures. I didn't have any neurological problems until I was in my mid 30s, with two children. My first seizure happened when my youngest was 18mo. For me (and another woman I came across), it happened around the time I was weaning my son, and it was a grand mal seizure. My guess is that it was related to the returning hormones combined with vulnerability. (My seizures *are* related to female hormones-"catamenial") (well, I should qualify that; they were for many years, but with increased stress load and a bad stretch of high stress, I am experiencing many more assorted problems that aren't only confined to a small monthly window) Any chance you can pinpoint during the month when you experience the symptoms? One tip I picked up from here was that progesterone only pills helped me, as mine were at the end of the month.

Driving laws are actually state-by-state, so it depends on what state you live in. Sometimes, it's a mandatory wait (like 6mo after last seizure); sometimes it's with a doctor's ok, etc. I understand your frustration a bit, as I've been in your place. It IS hard to parent and not be able to drive

We take it for granted until we can't. The first time I couldn't drive, I lived in a suburb and couldn't get anywhere. The second time, I lived in a small town and had to bus around; would take me an hour to get just a few miles across town to my doctor. I can't imagine living out in the country.

If your husband works a lot, maybe stress is contributing? I know stress lowers my threshold. By a lot.

BusinessGirl35 · 11-26-2012, 11:23 PM

I am new to this website, and don't really understand how everything works...but while everyone on this page is talking about something I think I have....may I ask a question?

Darlene · 11-27-2012, 01:15 AM

BusinessGirl35,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place to be.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Porkette · 11-27-2012, 06:47 AM

Hi BusinessGirl,

Welcome to the forum! As Darlene said feel free to ask anything. I hope we can be of help to you. Here's wishing you well and May God Bless You!

Sue

Bearpaw · 11-28-2012, 11:36 AM

Quote:

Originally Posted by Beanogirl

Hello everyone! I'm new to all of this and can use some support & guidance. I'll tell you a little about myself. I'm 32 years old. I have 2 children. I have a history of anxiety that started in college. Right after my daughter was born I was walking up the steps in my house and had this overwhelming sense of deja vu. It's like I caught a glimpse of a t.v show in my head that was familiar to me but I couldn't place it. I had tingling throughout my body, smelled something unpleasant (again familiar but couldn't place it) and after wards felt nauseous. Because I had nothing else to compare it to I thought it was anxiety related. Fast forward 4 years and I am still having them. They only last about 30 sec to a minute. I will have 3 of them in a weeks time and then nothing for a month or longer (I never recorded them b/c I thought they were anxiety related). I'm now pregnant with my 3rd child and had 4 episodes 2 weeks ago. I decided to write down all my symptoms to talk to my Dr. about it. I never brought it up before b/c I felt crazy saying "deja vu". I did an Internet search for anxiety with deja vu and it came up with a forum and a lady was describing her simple partial seizures that were misdiagnosed as anxiety and depression. I did a search for simple partial seizures and almost fainted when I seen all my symptoms matched. I made an appt. with a neurologist and she confirmed that she thinks I am also having them. I go for an EEG next week and she said I am not allowed to drive until we get them under control. I'm a stay at home mom in a rural area. I am having trouble getting my children to school, getting myself to all my dr. appts. (My husband works long hours). I am very scared and feeling a little lost. Any advice on meds, how long until I can drive again, what tests I can expect, anything would be appreciated. Thank you for reading.

Hello there, I am having similar symptoms, I am very scared and willing to share info with you anytime.
For the past 2 years. I have been having these spells. After an EEG which did not show much other than a bit of frontal lobe slowing, the doctor says they are probably "simple partial seizures". To describe them: first I get a sense of deja-vu then a weird sensation goes over my chest, then I can't understand what people are saying for a bit too, it lasts for about 1 min or so. I get them at different times, I may have 1 in a month or 30. They come at odd times, I get very bad headaches and memory loss and sometimes my words are mixed up a little.
I had my Sleep deprived EEG . While i was there I had one of my "spells" which is a good thing i guess. At the end the technician brought in a neurologist to talk to me. He said that I have definite epileptic seizure activity that will need more looking into. They will have to do an MRI for that soon. He said it could be scar tissue from something that happened to me at birth or early childhood. There are other things it could be. He said that my slight memory loss and my jumble words when I speak are also caused by this. I have been on different meds for over a year now and they are obviously not working and they will be getting me on track for that,,, I am also on an anti depressant.
They have taken my drivers license away and I work full time and this has been so difficult. I am told that I need to be seizure free for at least 6 months to a year but in Canada, each province is different on that.
I am taking dilantin 200mg twice a day. I have not had a seizure since middle of Sept.
I hope we can talk more sometime.

Porkette · 11-28-2012, 05:40 PM

Hi BearPaw,

I'm sorry to hear that you are having simple partial (aura) sz. The first thing you need to do is stop taking the anti-depressent because this will reverse your sz. med and it can cause sz. for you. I had to have an MRI, CT scan, SPECT scan and PET scan to find out what was going with me because the brain damage was so deep in my brain that they couldn't pick up much of it.
Start taking vitamin B12 once a day 1000 mcg. for adults 500 mcg. kids dosage cut back on starch food and carbs and cut back on caffeine. Stay away from nutra sweet or anything with nutra sweet (aspartame) in it because it causes more electrical activity in the brain. If you use a cell phone take note if you are having sz. before or after you've been on the phone even if you're texting because you may be cell phone sensitive. I found out that I was cell phone sensitive when I'm around others using a cell phone it will trigger a sz. for me do to the frequency of the cell phone and the electo magnetic field. Here's wishing you well and May God Bless You!

Sue

Farleybean · 12-30-2012, 09:51 PM

My 10 yr old son started having simple partial seizures in dec. last year. He had a few "biggies" and then settled in to having about one every week. Doc started him on Trileptal which caused a rash and more seizures. ER visit...Keppra. Lots of Keppra. He had a horrible reaction...hallucinations an some time in the ICU. We tried Topamax, Vimpat, Klonapin. Seizures continued to occur... between twice daily and every other day. He missed over a month of school. sadly, he wasn't the same boy I knew for a decade. He was scared, unfocused, unmotivated, and dull (brain altering meds).

I suspected something more than the doctors offered as an explanation (heads of neurology at children's hospital - we saw several). A visit to a DO, left us encouraged for the first time in months!

We went gluten free. We tested it by eliminating it for 2 weeks, and reintroducing it with one cookie. Within minutes he was crying. His face was red, palms sweaty, and getting electric shocks and zaps. The next day he was an emotional wreck and unable to concentrate at school. Since then, there have been a few accidental gluten ingestions...all end the same...with an over emotional boy, sweaty palms, electric zaps, stomache pain, and brain fog.

Non-celiac gluten sensitivity or gluten intolerance causes neurological symptoms. Google it.

My boy is back...bright again! He's happy and thriving. He has an episode about twice a month, but he is back to himself and off all drugs. Our neuro doesn't even care to see him anymore!

So so grateful.

Darlene · 01-01-2013, 02:49 AM

Farleybean,

It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

The best thing for you to do is to go to an Epilepsy Center which are usually at University Hospitals and see an Epileptologist I've gotten the most help from them and had to take the least amount of meds. To find out what med to take as the Dr. to do a DNA test on you and from that they will be able to find what seizure med will work the best for you with the least side effects. In regards to driving each state law is different. It is better for a person to see a specialist at least once a year.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

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