I have an app with a neuro in 2 weeks, but in the meantime Id like to know what others think is happening to me because Im getting quite freaked out .

It started with a feeling in my stomach ( like it feels when ur stomach drops on a rollercoaster) accompanied by a racing heart, and then the feeling would spread through my chest into my head and followed by a intense hot flush.

This would happen in waves for about an hour about 5 minutes apart and then end in a coldness and I would shiver for a few minutes and then it was gone. I didnt feel right for a while after but then it didnt happen again for a few days. The thing is, it would only happen of a night when I was just drifiting off to sleep or was asleep and when I would sit up it was far less intense but did still happen.

It has now progressed diffrently; it all happens in my right side. Well, it has happened in the left side twice but predominatly in the right side.

I get a tingling numbess in face, arm and leg. It gets pretty bad sometimes to the point of I cant move it for a few seconds, and I get a tightness in the right side of my head, with a feeling there isnt enough blood getting to it.

Over the past few weeks I have had these episodes at least once a week. the intial "attack" of buzzing, numbness, tingling, sweating, pressure, optical issues. Confusion comes in like waves which go for anywhere between 10 min to 2 hours, and then afterwards I usually have a kind if sick feeling in my gut like someting bad is gonna happen ...anxiety, and the right side of my body feels weak numb and tingling, and the right side of my head is either numb or feels like there is water running over it, and my right face feels droopy but dosnt look it.

In between these attacks, alot of the time I have eye issues... a few blurry bits on and off, occasionaly some spots, flasjing lights, sensativity to light.

For a few days before all this started I had noticed I was finding it hard to do things with my right hand, no so much unco but just weird and now its pretty much both hands like eating dinner is hard and so is typing.

I lost words very easy. Forgot names of simple things, even my daughters name eluded me for like 5 minutes the other day. I also get some pain in the ehad but nothing bad and usually only lasts for a minute or so. I have had a ct scan. Everything was good with that.

Any ideas would be great just to help me get some ideas before I go t the neuro. Im pretty scared right about now. Thanks Julie

Hi Julie,

I'm sorry to hear your are having these strange feelings. I know when I have a simple partial seizure also known as an aura seizure I get a nervous feeling in my stomach and I start to see different colors in my eyes. There have been other times when I will get the nervousness in my stomach and see colors in my eyes and it will lead to a complex partial seizure. The next time you get any of these feeeling tighten up the muscles in your body and make your hands into tight fists by doing this it can often stop the seizure.
When You see the neuro you might want to request having a veeg (video e.e.g) and request that they flash different color strobe lights one at a time, by doing this they can find out if certain colors are bothering you or causing you to have seizures. This is known as being photosensitive. You might want to go further and see an Epileptologist at an Epilepsy Center which are usually at University Hospitals or big hospitals. I've found I've gotten the most help from seeing an Epileptologist. Keep track of all of your possible seizures by writing them down on a calendar write down what time they happen and show this to your Dr. because often they can see a pattern in the seizures as to what time of day or night and what days of the month they happen. Also keep track what the weather is like because a low pressure can sometimes trigger seizures for some people. Try taking vitamin B12 once a day this helps reduce seizures for many people and I know it's worked great for me. Here's wishing you Well and May God Bless You!

Sue