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Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
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#1 | ||
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New Member
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Hi,
I'm brand new, and wrote the following on my profile page, but since it IS why I'm here, I guess it belongs there, too. ![]() My story: I was in my last college class before obtaining my degree in web development when I started having problems with focus and concentration. As an A student, this was especially frustrating, but I was pulling C's and was determined to get through it. Then, halfway through my last class, I experienced a grand mal seizure. I had never experienced a seizure before and epilepsy does not run in my family ![]() ![]() ![]() ![]() |
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#2 | ||
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Senior Member
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Hi Karla,
Welcome to the forum! I have been seeing an Epileptologist for yrs. instead of a neuro and they have helped me a lot. I have right temporal lobe epilepsy where I have absence, complex partial and simple partial (aura) sz. I know that when I went through my change my sz. decreased. I would skip a month of my cycle then it would start up then I would skip 2 months until it was over. This in turn affected my hormones and calmed them down because the estrogen level dropped and it's estrogen that will cause more excitement in a womans body and trigger a sz. My Epileptologist told me that women who have temporal lobe epilepsy often go through their change earlier in life and this can lead to either a decrease or increase of sz. I had to have a wada test done to pinpoint the exact cause of my sz. which was trauma before my birth which caused to many brain cells to go to the right temporal lobe causing scar tissue on my brain. My advice to you is to start taking vitamin B12 1000 mcg. once a day this will calm your nerves down and help decrease the sz. also if you like almonds or nuts start eating a few of them each day because they have progesterone in them which will also calm the nerves down. This is what I did and it worked great. I'm glad to hear that you are a writer I've been writing poems and short stories since I was a kid. I find writing along with listening to music helps calm the nerves. Try using scents like lavender or vanilla with lotions or candles this will also help you. I wish you the best of luck and May God Bless You! Sue |
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#3 | |||
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Legendary
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Karla,
![]() Sue has given you some great information to go by. Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. ![]()
__________________
. "Life without God is like an unsharpened pencil -- it has no point.
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#4 | ||
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New Member
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I have recently started having seizures too! I had my first one last month and just had a second two nights ago. NO history of seizures and I am starting menopause. I am 45 so I am going through menopause slightly early also. I seem to have had my 2 seizures when I am supposed to be having my period and am late. This cannot be a coincidence! I just started taking Keppra XR yesterday. I am supposed to be taking 1000mg a day (2 500mg pills a day - my doctors office cannot tell me whether that is 2 pills at bedtime or one in the morning and one at night). I hope these help - it is very scary for myself and my family. So far I am only taking 500mg. Trying to get my body used to the medication. I am insanely tired today. Hope that goes away. I am hoping to see a doctor who can tell me if this is just hormonal and whether I need hormone replacement therapy. The doctors look at my like I'm a freak having my first seizure at 45. My MRI was normal, but my EEG was not.
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#5 | ||
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New Member
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Hello,
I am a 45 year old woman who has just had my first seizure last month and had another one this month. I have started to go through menopause (confirmed with blood tests). I feel like this cannot be a coincidence. I have started taking Keppra XR. I am only taking 500 mg at the moment. The doctor prescribed 1000mg (2 pills a day), but I am having a rough time with it making me extremely tired and not able to focus, so I am easing into it gradually. I feel like this is all tied to my hormones going crazy. I have been late with my period for the last 2 months and have been under a lot of stress. My neurologist kind of sucks - who exactly should I see for this? I'm looking for a neuroendocrinologist but I am finding one hard to find. It's nice to hear of another person starting to have seizures later in life. They are very scary for myself and my husband and children ![]() |
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#6 | ||
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Newly Joined
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Quote:
I had my first seizure at age 46 while still having regular menstrual cycle but believe it is perimenopause related since never had any before. Have you found another dr. and have they agreed that this can be due to perimenopause? Thanks for your help! |
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#7 | ||
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Newly Joined
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#8 | |||
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Legendary
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Mary, ![]() Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. ![]() Darlene ![]()
__________________
. "Life without God is like an unsharpened pencil -- it has no point.
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#9 | ||
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New Member
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My seizure-like symptoms (limb jerking, slurred speech, lack of coordination, brain fog, etc.) began post-menopause. I'm presently age 55, went through menopause at age 49, and actual limb jerking, etc. began around age 53. However, the rapid blood pressure extremes (100 points in either direction - spikes and falls) since age 44. It's been a very long, expensive, and difficult road, only to find myself back to square one.
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#10 | |||
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Legendary
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![]() Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. ![]() Darlene ![]()
__________________
. "Life without God is like an unsharpened pencil -- it has no point.
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