hi Markrisgold,

what you are explaining is very similar to the type of seizure I had when I was pregnant with my first child. i already had a history of epilepsy and had mostly had grand mal seizures but then they seemed to stop during college so sy a four year period then I got married and got pregnant fairly early on and has d this happen. I couldn't talk, couldn't understand what others were saying i was weak, I think I passed out too and when I went to the Dr. they determined it was a migraine and put me on bed rest. I did get a bad headache afterwards. so I was on bedrest for a month before they took me off. Now I think i had several of these and it wasn't until maybe 7-8 years later when I was having what some docs thought were migraines again but were really seizures I went to a neuro in Minneapolis who is now retired and he diagnosed me with complex partial epilepsy. I also do have migraines but they are much different. I had complex partial seizures for quite a few years but then they once again started to go into grand mal seizures. i have an aura but I get confused and stand up and usually say something like the last time i said "Oh s***" waled into another room and hit the floor seizing.

but what you are despcribing does sound a lot like complex partial seizures. i would ofte3n end up paralyzed after and at that point would be conscious and would just not be able to talk or move for about ten minutes and then it would pass. sometimes my hands and feet would go into the most incredible positions and stay that way and they were stuck that way until the seizure was over. there is no way i could ever do those positions normally. Of course I would have great pain from that afterwards.

i agree with Sue that you should see a neurologist whose specialty is epilepsy. Neurologists usually have a sub specialty so the ones that know the most about seizures are epileptologists. and you find them mainly at University Medical Centers although you can also find them at Speicial Neurology centers as well.

good luck to you and taking Vit B12 will help. One good form is a tablet that you put under your tongue and let it dissolve. when it disolves sublingually like that your body can absorb it better. Also sometimes you can find it in a spray and that also absorbs very well. One place to get the spray is Mercola.com. I have no interest in this place and make no money from it i am just giving you a suggestion of where to find this. also Amazon.com has several different brands of the sublingual as well as sprays. I also have nerve damage in my face and neuropathy so my dose is supposed to be at least 5000mcgs. a day. I believe Sue says to take 1000mcg. it's a B vitamin so I don't think it hurts to take more as what isn't used is peed out. (I hope that was ok to say).

take care,
Sara

markrisgold,

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, welcome to a supportive and relaxing place.

I started having seizures when I was 10, which was 48 years. During that time when I would have a seizure I would remain in the same position as I was before it begin. If I had any thing in my hands I would not drop it and it was hard to get out of my hands. When I was in one, I would hear what someone was saying to me and form my words to talk back, but could not move my mouth.

Our shoulders are here for support in many ways. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Thanks Sara for the info. I find that the people who go thru things seem to know more than the Medical World!
I do take B12 as well as other supplements. I would rather take the Natural, Organic route any day over synthetic drugs.
I have went round and round with so many docs and ER's that I wasn't having a migraine when they tried to say I was! When you have migraines you KNOW WHEN you are having one and when you aren't!
I wake up with daily head pain and am nauseated and dizzy most days since this happened...is this normal? I see the Neuro tomorrow and if we aren't happy with him then we are going for a 2nd opinion elsewhere.
Thanks so much

Hi markrisgold,

When you see the neuro tomorrow you might want to ask for a DNA test to be done. This will show what meds will help you the most with the least side effects. Many times I've been dizzy for a few seconds and I will get wicked headaches after a seizure, I also get a nervous feeling in my stomach this is known as an aura seizure also called a simple partial seizure.
Try using the cold water therapy to see if it helps you. Put a cold washcloth on your face and neck 3 times a day this calms the neurons down in the brain and stops the seizures from happening. I went through a test a yr. or 2 ago when I was asked to take my temperature 3 times a day at the same time and each time after I had a seizure. The days I had any seizures my temperature was higher. I was also asked to keep track of how many times I yawned and the study showed that the days that I didn't yawn that much were the days I had the seizures. They have found that yawning helps cool a persons brain. In regards to vitamin B12 take 1000 mcg. once a day.
Here's wishing you well and May God Bless You!

Sue

Thanks so much Sue.
Look at my New Thread I posted, "My Neurologist is the crazy one!" for an update on my visit yesterday.