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Old 05-30-2012, 11:35 PM #1
Swilson Swilson is offline
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Join Date: May 2012
Posts: 1
10 yr Member
Swilson Swilson is offline
New Member
 
Join Date: May 2012
Posts: 1
10 yr Member
Confused Help for daughter

Hopefully this wont get long but i am going to tell my story to see if anyone has any relation. Ok in march my 11 yr old started telling me every so often her feet were numb and she was dizzy. My daughters diet consists 96 percent of carbs since kindergarten when she decided she wasnt eating meat. Everuthing she told me i associated with that.

Well in april i thought when she almost fell thati should take her in ( should also mention she is a cheerleader that does alot of tumbling) well the doc office said go to hospital in which they did labs ekg and ct scan and found an arachnoid cyst. Her doc ordered mri and said the cyst wouldnt cause any problems and referred us to neurosurgeon that said the same thing. Said he would recheck in yr to mske surr no bigger growth.

Well flash forward two weeks and on a fun day at school they went to park. Daughter calls and said her feet kerp going out and feel weird and she fell. I went out there and stayed with her with our puppy and then picked her up later and she was crying when she got in cat she said her foot felt dead when she sat and hurtd to stand on and she took off her sock and her ankle was swollen. So off we go to doctor all the while i could tell it was really bothering her.

We got to doctors and while in office waiting for doctor she was getting in more pain all the sudden she let out a scream and her whole leg stiffened so i ho to door to gey help and she starts having a major seizure and falls off exam table into floor before i can get back to her and continues for four minutes. They call 911.
After the seizure she jumps up and says im good now. Ambulance takes us to er and while there she said her leg was still hurting and then starts having another small one under a minute and ten min later the same thing. They gave her adivan in iv and sent us home with diavan rectal incase.
Her doc sent us to neurologist neirologist said he felt like it was because of cyst but wanted to do eeg. He started her on trylamptil (sp) and then last week we went to eeg. He called two days later and said stop her meds because eeg didnt show epilepsy activity and he felt like it may ne stress. So to come in( today) then her doc calls me yesyetday and said he got eeg report from neuro and it was normal and he thinks they are pseudo seizures and so today we go in and neuro said eeg didnt show epilepsy but showed slowing waves in right and left frontal lobes independantlly which may represent focal neuronal dysfunctional in the left and rigt temporal regon independabtly.

I have no idea what that means. So then he said he wants to try to trigger one in office and has her lay down while he puts pressure in the back part of her head neck. Why did he do this. It didnt trigger one but scared her to death. Then he said he wanted to schedule a video monitered eeg overnight athospital. Which idk when it will be. I am so lost dobt know what is going on or what to think.
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