On Sunday night, May 27th is when the problems started. I was just sitting on my sofa when I started feeling bad all of a sudden. I started to feel nauseous and lightheaded. I ended up falling down in my bathroom and seizing on the floor. I was aware during the whole episode but I was not able to speak or move. When my fiance found me, I still couldn't talk or walk but had stopped seizing. We went to the ER and had about 6 more seizures before the night was over.

The doctor who saw me doesn't think it was a seizure simply because I was awake and didn't lose control of my bowels. I'm not kidding, that is what she said. They had given me Fosphenytoin through the IV but I broke out in hives. So I ended up on Dilantin which hasn't given me any adverse reactions so far, but does make me a little groggy. They took a CT scan and an ECG but said they didn't find anything abnormal.

I'm currently in the process of finding a neurologist to see what's going on. I have been ordered not to drive until cleared by a doctor. In the meantime, I have been researching seizures and I think I'm having simple partial seizures. The descriptions fit perfectly with what I've experienced. I read its a good idea to keep a journal of each episode, so I started one. It's really frustrating to not know what's going on and have the doctor's treat me like I'm faking it.

I once had some episodes about 5 years ago. I didn't know they were seizures until now and hadn't had anymore until Sunday. I had consulted my primary physician and she said it was nothing. I'm looking for a new primary care doctor as I don't like her for a number of reasons.

So far, I have been awake through all the ones that I know I've had. I had another one last night and I think I might have had one in my sleep. My dog, who is extremely docile, pounced on my chest to wake me up and looked me straight in the eyes. Once he was satisfied I was awake, he laid back down and went to sleep. It was so weird and unlike him to do something like that.

I'm just really confused...

Amoinete,

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Here are a great number of dear friends to listen when you are in need of ears. Please let us know how we can help you out. You will find out we are supportive and relaxing place.

You have came the right place for some assistance with epilepsy. I myself have had epilepsy since I was 10 years old. I too when going through a seizure I was unable to talk, seems I could form the words but unable to form my mouth to speak.

On beginning a new medicine it takes a while to get into your blood stream. I was on Dilantin while I was a child, but was unable to control my seizures because I could not take enough. Although one medicine which someone may not help another.

Here are some suggestions I have for you. My advice to you is to see an Epileptologist (Dr. specializing in epilepsy) and go to an Epilepsy Center which are usually found at University Hospitals or Big hospitals. Often a person may vomit when having a seizure and it's all part of the seizure. Try taking vitamin B12 1000 mcg. once a day to help calm the nerves and this may help reduce your seizures. Afford being around bright flashing lights like in a theater. If you are watching a movie there closes your eyes to avoid the flashing.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Hi Amoinete,

Welcome to the forum! Darlene gave you some great news about seeing an Epileptologist, taking vitamin B12, and going to an Epilepsy Center.
The type of seizure you are discribing sounds like a simple partial seizure also known as an aura seizure. This has happened to me many times over the yrs. and I learned that the moment that the weird feeling begins you should tighten up all the muscles in your body and make your hands into tight fists, if you do this in time it will stop the seizures. My neuro. taught me this back in the early 1970's.
The reason why your dog jumped on your bed is because the dog could sense you were having a seizure. Dogs can smell a chemical the human body gives off that we can't smell before a seizure happens and then the dog will come near the person and if they are a seizure alert dog (dogs trained to protect people with seizures) they will either bark, or put their paw on a person before the seizure will happen.
You will get a lot of help and support her from everyone. I wish you only the best of luck and May God Bless You!

Sue