Hi, I haven't posted in here in a long time. But Derrick is having lots more seizures again. He is clustering with about 2 to 3 gone seizures a night, three to four nights a week. The thing that makes this so hard is that his seizures he usually knew they were happening, and these he doesn't.

And since he has complex partial, simple and 2nd generalized I'm not sure
what they categorize these in. Because we aren't seeing them. Just the
off and the after effects of them. Or the fact that he missed something
that we know happened.

So its hard to know. He needs fast and immediate sleep, and sometimes
is just so tired and just is out. But its not for the rest of the night usually.

But that is another way to know its seizures. So we are waiting on a
call from neuro for a add probably of the fourth seizure medicine along
with his VNS. I've been putting this off since August 2006 and I know
its time. I wanted to get him off a medicine then add another if necessary
but we just cant' get one gone. He is maxed on the other three.

Donna