[southie]

I've had Neurological problems since the day I was born and the Hospital (where I was born) began treating me in 1963, and didn't really press on until 1966, when Shands Hospital (Gainesville) laid out the "foundation" (plan). For generations I have spent more time under the sun than I care to know, and I've seen the progression and changes in the Neurology Department as well as the Other Departments ~ as well as the decline of the genetic/inherited Neurological problem I have (I'm adopted).

It has gotten to a point that I've progressed from a Regular Neurologist to a Level 2, Level 3 ... and now they're pushing me into a Level 4 Epilepsy Center.

My Concern Lies Here:
My Problem isn't all Epilepsy - Epilepsy is a small part of the problem but not all of it. While I've spoken with the Level 4 Center they've assured me that they deal with other Neurological Disorders, but they do not answer all my questions.

I do have a conference shortly with my Doctors about heading this direction.
I'm not exactly "thrilled" - about heading this direction.

What can I expect from a LEVEL 4 CENTER?

Anyone ever been to a LEVEL 4 CENTER?

[theoneRogue420]

I can be of no use to you, Southie... I am only recently diagnosed.

I just wanted to send you good luck and best wishes. I would hope that the higher level you go to, the better the Dr.s and the info they have to share.

[Ellie]

I don't even know what that is. I hope someone chimes in to give you information and educate me!

Hope you're doing well, Southie. I've been busy as heck. My pre-op is today and I have surgery next week (not brain related) so I'll be MIA for a while, too. Make sure you update this when you find anything out!

[Porkette]

Hi southie,
I've been to an Epilepsy Center many times but I've never heard of a Level 4 Epilepsy Center. I can tell you at a Epilepsy Center there are neuros. , epi's, neurosurgeon, and neuropsych. working together as a team to help people with e. Since going to an epilepsy Center I take fewer AED's, I've had 2 brain surgeries to help reduce my sz. , and I've seen a neuropsych for testing to pinpoint the exact locations on my brain causing sz, what caused my sz., and also to check my short term memory. All of these Drs. I've seen are specializing in epilepsy only and they are way ahead of any neuros. I ever saw in 30 yrs. Here's wishing you well and May God Bless You!

Sue

[southie]

Level 4 Epi Care Center

This is where I will be heading to, after I have my Oral Surgery
done, I will meet the Epi next week, he already knows what
all is going on and is aware of the upcoming Oral Surgery (it
has to be done), then once I recover from that and heal, then
*BOOM* - I'm going to be in the Level 4.

Level 4 is the highest you can go in the Neurology. (There is no
"higher" level than level 4 in the Neurology field)

I was hoping someone who's been there would give me some
idea of what it's like, and share their experience, the highest
I've ever gone was Level 3.

But I can see that no one's gone that high ... Thanks anyway!

((((((( hugs )))))))



------------------------------------

ELLIE: ((((( Prayers for you and hope you feel better soon! )))))

[southie]

National Association of Epilepsy Centers - LEVEL 3/4 Center Map

Just click on your State (not all States have
Level 3/4 Available) or the one closest to you.
And the list will appear of all LEVEL 3/4 Epilepsy Centers

The National Association of Epilepsy Center is extremely
strict and rigid in their guidelines, and are associated with
the American Epilepsy Society & Epilepsy Foundation.

PS: Can this be moved to the information section?