I am a new member and on Dec 28th I had a seizure ever since then I have experienced motion sickness, random nausea, dizziness and migraine headaches. I had an EEG this afternoon and right after the light test I felt my left eye twitching followed by my head, arms and legs jerking. The lady who gave me the test asked if I could feel my body jerking. I felt like I did right after my seizure on the 28th, my brain felt scrambled as if someone had violently shook it. Throughout the remainder of my EEG I experienced my body jerking. I should mention that I am also being treated for PTSD. Has anyone experienced this before and is this a normal reaction?


Timber

Hi Timber,
Welcome to the forum! It sounds like you may have been having a sz. (seizure) during the e.e.g. with the jerking around. This will show up in the e.e.g. and also if this happened when the lights were flashing it will show that you are photosensitive meaning bright light or certain color lights will trigger sz. PTSD can sometimes trigger sz. for a person.

As I have told others have your family Dr. refer you to an Epileptologist and take vitamin B12 1000 mcg. once a day it will help calm the nerves and in some cases it reduces and stops sz. for people. I wish you the best of luck and May God Bless You!

Sue

Sue,

Thank you for your quick reply. I have been taking the B12 for about 7 weeks. During my EEG I could feel my head started shaking first followed by my arms and legs. I am pretty sure that I passed out for a few. I did not think I was shaking that bad. I was told different. During a seizure can you feel yourself having it and does your head start shaking first? Sorry for the questions, I just feel alone!

Hi Timber,

Often in the beginning of my sz. I can feel myself shake and then I blank out and I don't remember anything until the sz. is over. This may sound crazy but if you can feel the sz. starting up try and tighten up all the muscles in your body and make your hands into tight fists by doing this it can sometimes stop the sz. A neuro. I had back in the l970's taught me this and it has stopped many sz. for me over the yrs.

Also if you haven't been keeping track of your possible sz. get a calendar and write down what time of day/night the sz. happens along with a description of the sz. I make a little key up for myself since I don't have a l ot of room to right the details of my sz. on a calendar Ex. A- aura sz., B- absence sz. CP- complex partial sz., etc. If you keep track of your sz. your Dr. may see a pattern into what time of day/night the sz. happens. If I may ask are you taking any seizure meds now?
Wishing you only the best and May God Bless You!
Sue