Hi Pearlescent,

I'm very happy to hear that you haven't had to take any medications over the yrs. personally I ask myself if Drs. sometimes over medicate a person just to make money from the drug co. making the drugs they prescribe. You mentioned that you may have had heartburn at one time. I will tell you that it has been proven that some people with heart disorders/problems will end up having sz. in some cases it all depends on how the blood flow is along with a few other things with the heart. I found this out a few yrs. ago so if there are any heart problems be sure to let the Dr. you see know about it. I wish you only the best of luck and May God Bless You!

Sue

Well, I went to the cardiologist for my chest pain, and he did a stress test and an echo. He said they both came back fine, so he just gave me an antacid because he said it was most likely just acid reflux. So I don't know, but at least those two tests said my heart was fine.


I had my EEG a few hours ago. I'm really frustrated because I could not sleep no matter what. I tried so hard, but I pretty much knew going into it that there was no way I would be able to fall asleep in that short a time frame. That's one thing that probably exacerbates my condition; I can never sleep until I get to the point where I'm exhausted to the point of hardly knowing what my name is, basically. So I guess if my issues occur mainly during sleep, they won't see that in the results. Grr.

Something really freaky happened during the hyperventilation part, but I don't know if it was a normal reaction. It started feeling like my entire body was shaking/vibrating, but it wasn't. It was really bizarre and scary. I stopped the heavy breathing after like a minute because I couldn't stand the feeling; then she made me continue after a little while. So she came in the room and asked if I felt like my head was tingling. I told her no, it felt like my whole body was tingling, and she asked if I was having a panic attack. I said I didn't think so. That was really strange and shook me up, though. Not sure if it means anything. It took forever after she left the room to let me sleep for the vibrating/tingling feeling to stop. I feel like I may have been able to sleep had she not had me do that beforehand.

I guess I'll see what my results look like next week.

Hi Pearlescent,

I'm very happy to hear that things are going well with your heart. In regards to the tingling you felt during the e.e.g. I have heard many people say that they get that feeling during or before a sz. so maybe it was good that it happened and it will show on the e.e.g. if there was any spiking in your brain when that happened. Also if you were tired that was good, I've had to have a sleep deprived e.e.g. where I stay up all night and the next day have the e.e.g. and it shows a lot of electrical activity in my brain.
I'm not sure but the tingling you felt could have been a simple partial (aura) sz. starting up. I wish you the best of luck and May God Bless You!

Sue

I was unfortunately not as sleep deprived as I would have liked to have been. I tried to only get in an hour of sleep the night before (they said I could have up to 4 hours), but then I woke up and fell right back to sleep for another 2 hours. I ultimately wasn't able to fall asleep during the test, which I'm very upset about, but I tried the hardest I could to relax and sleep.

It'll be interesting to see if anything showed up when I had that tingling feeling. I kind of think the tech would have told me if there was, but maybe not. I'll find out soon enough.

Thank you for all of your responses!

pearlescent,

Like Sue said, it is good to hear of your stress test and an echo exams. At least that is one problems that turned out good.

Also nice to hear you made it through your EEG. I have been through so many of them unable to fall asleep, but did fall a sleep once, back when I was little.

Hope everything turns out o.k. with the results, so you can get some answers. Keeps us up to date on the results you receive. My thoughts and prayers are with you.

Darlene

The doctor said my EEG was "completely normal" and tried to push depression and anxiety medication on me. I tried to explain to him about 12 different ways why I had adequate reason to believe something other than a mental illness was going on, and he refused to listen to me.

So I essentially fired him as my doctor, and I'm done with neurologists. I did unexpectedly come across an OBGYN the other day who said he was going to do everything he could to help me...not sure how much an OBGYN can do, but he wants to run some testing and refer me to some "friends of his," so we'll see where that takes me. Other than that, I have other things to spend money on than doctors who think they're God, so...that's where I stand.

Hi Pearlescent,
I'm sorry things didn't work out well with the Dr. and the e.e.g. my advice to you is to start seeing an Epileptologist these Drs. specialize in epilepsy and will find out for sure if you are having sz. or some other medical problem and then they will find the cause of the problem and if needed put you on the least amount of meds to help you. I saw many different neuros. over the yrs. and only 1 of them has done as much work as my Epileptologist but then again he was in the medical practice for many yrs. today he would be in his
80's if not older. Go to an Epilepsy center and they will be able to help you out. Here's wishing you only the best of luck and May God Bless You!

Sue