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Old 07-01-2013, 06:41 PM #1
Porkette Porkette is offline
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Hi Pearlescent,

I'm very happy to hear that things are going well with your heart. In regards to the tingling you felt during the e.e.g. I have heard many people say that they get that feeling during or before a sz. so maybe it was good that it happened and it will show on the e.e.g. if there was any spiking in your brain when that happened. Also if you were tired that was good, I've had to have a sleep deprived e.e.g. where I stay up all night and the next day have the e.e.g. and it shows a lot of electrical activity in my brain.
I'm not sure but the tingling you felt could have been a simple partial (aura) sz. starting up. I wish you the best of luck and May God Bless You!

Sue
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Old 07-01-2013, 11:31 PM #2
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Quote:
Originally Posted by Porkette View Post
Hi Pearlescent,

I'm very happy to hear that things are going well with your heart. In regards to the tingling you felt during the e.e.g. I have heard many people say that they get that feeling during or before a sz. so maybe it was good that it happened and it will show on the e.e.g. if there was any spiking in your brain when that happened. Also if you were tired that was good, I've had to have a sleep deprived e.e.g. where I stay up all night and the next day have the e.e.g. and it shows a lot of electrical activity in my brain.
I'm not sure but the tingling you felt could have been a simple partial (aura) sz. starting up. I wish you the best of luck and May God Bless You!

Sue
I was unfortunately not as sleep deprived as I would have liked to have been. I tried to only get in an hour of sleep the night before (they said I could have up to 4 hours), but then I woke up and fell right back to sleep for another 2 hours. I ultimately wasn't able to fall asleep during the test, which I'm very upset about, but I tried the hardest I could to relax and sleep.

It'll be interesting to see if anything showed up when I had that tingling feeling. I kind of think the tech would have told me if there was, but maybe not. I'll find out soon enough.

Thank you for all of your responses!
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Old 07-02-2013, 01:20 AM #3
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pearlescent,

Like Sue said, it is good to hear of your stress test and an echo exams. At least that is one problems that turned out good.

Also nice to hear you made it through your EEG. I have been through so many of them unable to fall asleep, but did fall a sleep once, back when I was little.

Hope everything turns out o.k. with the results, so you can get some answers. Keeps us up to date on the results you receive. My thoughts and prayers are with you.

Darlene
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pearlescent (07-02-2013)
Old 07-12-2013, 11:51 AM #4
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The doctor said my EEG was "completely normal" and tried to push depression and anxiety medication on me. I tried to explain to him about 12 different ways why I had adequate reason to believe something other than a mental illness was going on, and he refused to listen to me.

So I essentially fired him as my doctor, and I'm done with neurologists. I did unexpectedly come across an OBGYN the other day who said he was going to do everything he could to help me...not sure how much an OBGYN can do, but he wants to run some testing and refer me to some "friends of his," so we'll see where that takes me. Other than that, I have other things to spend money on than doctors who think they're God, so...that's where I stand.
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Old 07-12-2013, 07:30 PM #5
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Hi Pearlescent,
I'm sorry things didn't work out well with the Dr. and the e.e.g. my advice to you is to start seeing an Epileptologist these Drs. specialize in epilepsy and will find out for sure if you are having sz. or some other medical problem and then they will find the cause of the problem and if needed put you on the least amount of meds to help you. I saw many different neuros. over the yrs. and only 1 of them has done as much work as my Epileptologist but then again he was in the medical practice for many yrs. today he would be in his
80's if not older. Go to an Epilepsy center and they will be able to help you out. Here's wishing you only the best of luck and May God Bless You!

Sue
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pearlescent (07-20-2013)
Old 07-13-2013, 08:30 PM #6
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I go to an incredible adult epilepsy center in the Center for Advanced Medicine of Barnes Jewish Hospital in St. Louis. Every one of the neuros there is called neurologist .... not one goes by "epileptologist". So I don't worry much about titles.
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Old 07-20-2013, 02:04 AM #7
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Hello, me again.

Quick question: Does anyone know if theres's anything significant about "generalized slowing" on an EEG? I requested a copy of my EEG report and am kind of annoyed for two reasons. One because my jerk neurologist (who isn't my neurologist anymore; just officially "fired" him) wrote on there that I had a "history of anxiety." It's really difficult to get anyone to take your situation seriously after a doctor write down that you have a history of mental illness. Argh. Anyway, moreover, it says in the report that "generalized slowing" was observed during hyperventilation, which is not what my neurologist told me. He told me that my EEG was "completely normal." Even if it isn't a specific finding, it's still a finding, and it irks me that he just decided he didn't have to tell me at all.
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