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Old 08-11-2013, 02:36 PM #1
johnno31 johnno31 is offline
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Default what is this? these jersk and rushes

Mine have been going on for years. It was diagnosed as hypnogogic jerks, I think, and it is terrifying. I have to point out this happens when wide awake, during the day, but my head jerks when I try and sleep. It is a sudden rush that feels like it goes up my chest and jerks my head within a split second.

Neurology has ruled out epilepsy as the EEG is OK apart from one which had something slight on the front left lobe, I think. I am male and 31. I have suffered from this since I was 16 or so, and common factors are lack of sleep, the day after drinking alcohol, a hard workout at the gym. It's terrible and I have given up on finding out what it is and if can be treated. It is hard to find people with similar symptoms. It can last from 10 minutes to an hour and the dizziness is horrible. i also suffer from stiff fingers which i have to crack to releive them like they shatter.

I have had mri brain which is fine. Could this be adrenal related???

Any comments welcome and appreciated
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Old 08-12-2013, 05:51 AM #2
Porkette Porkette is offline
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Hi John,

What you are describing sounds like you are having myoclonic jerks which is all part of the motor area of your brain causing these jerks. You need to stop the alcohol because this can trigger the jerks you are having. Start taking vitamin B12 1000 mcg. once a day this will calm your nerves down. I also am wondering if you have a sleep disorder that may be causing you to have these jerks and possibly seizures. Get a sleep study done to see if you have sleep apnea.
The best thing for you to do is to see a Epileptologist at an Epilepsy Center than can do a lot more tests on you and find out if it's a form of epilepsy or something else that's firing up the neurons in the brain that's causing the problem. Cut back on caffeine, carbs and starch foods and stay away from anything with nurtra sweet in it because all of these fire up the neurons in the brain causing more electrical activity. Also keep track of the weather often a low pressure in the weather can cause neurology problems for some people. I always have seizures, Here's wishing you only the best and May God Bless You!

Sue
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Old 08-20-2013, 05:35 PM #3
johnno31 johnno31 is offline
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Default thank you

Thanks sue i really appreciate the feedback and your thoughts i will follow this up and get back to you

John
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Old 08-22-2013, 06:10 AM #4
Porkette Porkette is offline
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Hi John,

How's it going? I hope all is going well for you. It was no problem helping you out and if I can be of any help to you anytime just post a question everyone here has been wonderful to me over the yrs. and a great help. Wishing you the best of luck and May God Bless You!

Sue
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Old 09-07-2013, 04:26 PM #5
Paul123 Paul123 is offline
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Quote:
Originally Posted by johnno31 View Post
Mine have been going on for years. It was diagnosed as hypnogogic jerks, I think, and it is terrifying. I have to point out this happens when wide awake, during the day, but my head jerks when I try and sleep. It is a sudden rush that feels like it goes up my chest and jerks my head within a split second.

Neurology has ruled out epilepsy as the EEG is OK apart from one which had something slight on the front left lobe, I think. I am male and 31. I have suffered from this since I was 16 or so, and common factors are lack of sleep, the day after drinking alcohol, a hard workout at the gym. It's terrible and I have given up on finding out what it is and if can be treated. It is hard to find people with similar symptoms. It can last from 10 minutes to an hour and the dizziness is horrible. i also suffer from stiff fingers which i have to crack to releive them like they shatter.

I have had mri brain which is fine. Could this be adrenal related???

Any comments welcome and appreciated

Hi John,
I suffer from the same myclonic jerks but they hit my whole body like an electric shock. They are worse in the evening and at night. I to have had a brain scan which showed nothing wrong. I have tried virtually all drugs available but the only thing that works well for me is Tramadol. My neurologist has said its a case of finding out what works for you. Hope this helps. Paul
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Old 09-07-2013, 05:20 PM #6
Paul123 Paul123 is offline
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Quote:
Originally Posted by johnno31 View Post
Mine have been going on for years. It was diagnosed as hypnogogic jerks, I think, and it is terrifying. I have to point out this happens when wide awake, during the day, but my head jerks when I try and sleep. It is a sudden rush that feels like it goes up my chest and jerks my head within a split second.

Neurology has ruled out epilepsy as the EEG is OK apart from one which had something slight on the front left lobe, I think. I am male and 31. I have suffered from this since I was 16 or so, and common factors are lack of sleep, the day after drinking alcohol, a hard workout at the gym. It's terrible and I have given up on finding out what it is and if can be treated. It is hard to find people with similar symptoms. It can last from 10 minutes to an hour and the dizziness is horrible. i also suffer from stiff fingers which i have to crack to releive them like they shatter.

I have had mri brain which is fine. Could this be adrenal related???

Any comments welcome and appreciated

Hi John,
I suffer from the same myclonic jerks but they hit my whole body like an electric shock. They are worse in the evening and at night. I to have had a brain scan which showed nothing wrong. I have tried virtually all drugs available but the only thing that works well for me is Tramadol. My neurologist has said its a case of finding out what works for you. Hope this helps. Paul
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Old 01-31-2014, 11:16 PM #7
dabearzfan85 dabearzfan85 is offline
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Quote:
Originally Posted by johnno31 View Post
Mine have been going on for years. It was diagnosed as hypnogogic jerks, I think, and it is terrifying. I have to point out this happens when wide awake, during the day, but my head jerks when I try and sleep. It is a sudden rush that feels like it goes up my chest and jerks my head within a split second.

Neurology has ruled out epilepsy as the EEG is OK apart from one which had something slight on the front left lobe, I think. I am male and 31. I have suffered from this since I was 16 or so, and common factors are lack of sleep, the day after drinking alcohol, a hard workout at the gym. It's terrible and I have given up on finding out what it is and if can be treated. It is hard to find people with similar symptoms. It can last from 10 minutes to an hour and the dizziness is horrible. i also suffer from stiff fingers which i have to crack to releive them like they shatter.

I have had mri brain which is fine. Could this be adrenal related???

Any comments welcome and appreciated
New to the forum, just searched for jerks and found your post. This is EXACTLY the symptoms I experience, even down to the nasty feeling that shoots through your body. In fact I made a youtube video to try to get anyone to help me figure out what causes this - http://www.youtube.com/watch?v=dQDsJkWR6pE

I've read that clonapen may help and trazadone 100mg has helped me a bit, but I am at a loss as to what to do too. Has anything helped you out?
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Old 01-31-2014, 11:20 PM #8
dabearzfan85 dabearzfan85 is offline
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Quote:
Originally Posted by Porkette View Post
Hi John,

What you are describing sounds like you are having myoclonic jerks which is all part of the motor area of your brain causing these jerks. You need to stop the alcohol because this can trigger the jerks you are having. Start taking vitamin B12 1000 mcg. once a day this will calm your nerves down. I also am wondering if you have a sleep disorder that may be causing you to have these jerks and possibly seizures. Get a sleep study done to see if you have sleep apnea.
The best thing for you to do is to see a Epileptologist at an Epilepsy Center than can do a lot more tests on you and find out if it's a form of epilepsy or something else that's firing up the neurons in the brain that's causing the problem. Cut back on caffeine, carbs and starch foods and stay away from anything with nurtra sweet in it because all of these fire up the neurons in the brain causing more electrical activity. Also keep track of the weather often a low pressure in the weather can cause neurology problems for some people. I always have seizures, Here's wishing you only the best and May God Bless You!

Sue
I too suffer from these exact symptoms, but do not know where to turn to for help. Was wondering when you said ,"The best thing for you to do is to see a Epileptologist at an Epilepsy Center than can do a lot more tests on you and find out if it's a form of epilepsy or something else that's firing up the neurons in the brain that's causing the problem." -what is the difference between a neurologist and epileptologist? I have had a sleep study done as well as taken videos of myself sleeping, but the sleep study people are quite frustrating as they say they said that they had never seen the jerks that i was presenting, and something about the EEG being done at a different frequency than neurologists use. It is INCREDIBLY frustrating b/c I feel the symptoms every night, have it documented from the sleep study, yet they will not show the video to anyone else.

Thanks for the advice and help,

Matt
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