[bams1414]

Well, I am new to this board. I used to post on BT but have been off of meds for 3 years. Recently a whole host of things has caused my seizures to return and I am back on Zonegran.

My doc is having me double once a week on the dosage which seems pretty quick.

Last time I took this half of my hair fell out and half of my body melted off.

[Bernard]

Hi bams, nice to see you here too.

[Ellie]

Originally Posted by bams1414

My doc is having me double once a week on the dosage which seems pretty quick.

Last time I took this half of my hair fell out and half of my body melted off.

Hey Bams and welcome!

My doctor will double mine every 7 days, too. I lost hair with Depakote, but haven't tried Zonegran. I'm on Lamictal now, but it's just my 3rd week. Had an increase, but I forget to take my meds on time more often than not.

By half of your body melting off, did you mean like a rash or skin loss? Did they make sure you're not allergic or have the tried something else?

I'm sorry about the seizure return, that always stinks.

[bams1414]

No I mean like 60-70 pounds!

I was on lamictal and struggled with that drug for a couple of years. I just lost too many words on it. I hope you tolerate it better. It is so odd how these pills work so differently for different types of people.

[southie]

Ummmm - I'm on Zonegran / Zonisamide, but I never lost that
weight, maybe 10 pounds tops, but if I lost that much weight,
I'd have to rename myself to Invisible Woman.

Exactly what do you mean by "doubling" of the Zonegran?

I am currently on 500 mgs Zonegran / Zonisamide daily along
with another AED.

[bams1414]

I mean that I take 100 mg for 7 days, then 200 mg for 7 days, then 400 mg for 7 days, then 500 from then on after.

i have a technical job. this seems like it might be rather difficult.

[Ellie]

Oh, hah. I feel kinda stupid now. I had an awful visual of your skin melting off! I sat there thinking, "And here I complained about a mood swing." lol

Anyway, I'm underweight as it is, so I doubt they'll ever test me out on anything that may cause my losing weight (around 100lbs and will be 30 in a couple of weeks). That sure stinks, though. Lamictal seems to be different so far, I lose my appetite then gain it back with force. So I'm either starving or not hungry at all. I also had an aura increase, where you kind of hang there without having a seizure (which at that point I'd rather just have one and get it over with than hang for 3 hours).

Have you asked them if you could try something else?