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Old 07-28-2014, 01:36 PM #1
music-in-me music-in-me is offline
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Hi everyone,

I posted some time ago, and wanted to update you all. I will be going to the Cleveland Clinic Epilepsy Center on Wednesday (7/30) to do yet another EEG.
After having 3 others done previously with other Neurologists, the Epileptologist there wants to do a video EEG in the hospital for 5 to 7 days.

He said he was concerned because my husband told him that when the spells occur, my pupils dilate and I smack my lips. I have previously been told that the EEGs I had were all negative for abnormal electrical activity. I hope this time they can finally see and record these events so I can get an actual diagnosis.

What do you think are the chances of recording a seizure with this type of EEG? I am praying that this will be the final time I have to try to find out what these are. Thank you in advance for your responses. M-i-m
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Old 07-28-2014, 01:48 PM #2
Sitke Sitke is offline
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Hi M-i-m,

Just want to wish you all the best when you have that EEG and so hope you get an answer
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Old 07-28-2014, 07:15 PM #3
Porkette Porkette is offline
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Hi M-I-M,

Just like you I had an e.e.g. done but it didn't show all of the problem I had that was triggering sz. I later had a video e.e.g. and the Dr. saw me having sz. and they got a lot more detail of the areas of my brain that were triggering sz. and the type of sz. I was having. From what you describe it sounds like you may be having a complex partial sz. I have this type of sz. and I will often have pupils dialated, along with smacking my lips, and sometimes I wander around and I don't realize it until after the sz. is over and I find myself in another room. I wish you the best of luck and you may want to ask the Dr. to to a Wada test, spect and pet scan on you while you are there these tests show a lot of detail. Also if you know of anything that triggers sz. for you let the Dr. know I found drinking diet soda or bright flashing lights will often trigger sz. for me. Wishing you the best of luck and May God Bless You!

Sue
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