[Daisy9980]

I just had a 24 hour EEG in august came back with sz activity in my left temporal lobe so I am just sad. They have to up my meds just a little. But the neuro doesn't even want to see me. I am just annoyed that I am not even aware when these are happening. But I just figured I would stop by and say hello to everyone it has been a while. Take care, Tracy

[vodpop]

Tracy!
How have you been? It's been a long time since I've been here either (Stefie). We used to 'visit' a fair amount on the old site about a year ago (or so, my memory isn't great). Good to see some familiar names. I've changed mine- just a little too close to my real name ya know?!

Stef

[Rocking4Epilepsy]

Hi Tracey
Its good to see you...
Glad you found us...

hugs

[Daisy9980]

OMG Stefie!!!!!!!!!!
How are you doing... It has been a long time and I am so glad to see you here. I really hope all has been well for you Hmmm maybe I should think about a name change

[Daisy9980]

Jen thank you so much for directing me over here. You have ALWAYS been soooo helpful. I appreciate it. Great to see you ~Tracy

[vodpop]

Tracy-

It's been a long time, indeed. Busy too! The last time we typed you were still looking for a correct diagnosis and I know how frustrating it is to finally get one. But at least now you have it. Hopefully now you can start on working towards the therapy/cure to make things better for you.

As for me, I still have my headaches,they are just different now. I go for another MRI tomorrow. Looks like the seizures are starting to return. But at least at this point they are only sp's. I started Topamax about 2 1/2 weeks ago and hopefully that will put a stop to them and keep them from getting any worse.

keep in touch!

stef

[jingle]

Hi Tracy -- Sorry to hear about your EEG and I wonder why your neuro doesn't want to talk to you about it. g-r-r-r-r-r-r.

Stef -- I'll sure be thinking about you tomorrow and I hope you'll tell us what the results are.

[vodpop]

Tracy & Jingle-
Hello again!
I got my MRI results today. No change. For once, no change is good change. I can't believe what a difference the Topamax has made so far. The headaches are so much better. I still see spots some times, but not nearly as bad as I did. I'm still titrating on so hopefully the small amount left will make all the difference (with no further side effects).

Wishing us all good health.

stef

[jingle]

Wow - Stef - wonderful news. Absolutely wonderful. I'm SO glad you had the MRI and even 'gladder' the results are so good.

I've been on Topamax since it was 'legal' and it never made in change in headache for me but - again - it's great that it has for you.

My next MRI is Oct. 19. Oct. 19 includes visit to surgeon simply to discuss films and visit with neurologist to discuss decreasing meds.

[Daisy9980]

Hey stef glad to hear that. I see spots too we should talk about that email me when you get a chance. Keep me updated

I am having a hard time really accepting this all. It all makes sense. But it has just jumped lobes frontal to temporal so that just bothered me a little. If anyone has any info to pass along that would be great Tracy