Sharon and Porkete, this is very interesting to me as my computer has been triggering most of this arua and ugly feeling of being removed form my body, every time i reseach. you see ive had a problem on and off with balance for years so this is my way of finding out whats wrong so i can help myself get well my reseach is all done on the computer , looks as if i have to buy one of the lcd moniter or flicker free screen.
as soon as i get on the comp, with in 1 minute my arms and legs are finching and arua happens. i havent heard of this Migralepsy. some one along the way had mentioned atypical migraine as possibly being the reason behind my balance issue and now they are saying possible seizure so i could have both, Maybe? i'm so confused.
thanks so much guys,
hugs jen

Hi Jen,
I found that the brightness of a computer monitor would often trigger sz. for me. In regards to balance I have very poor balance also. I found out that often this is do to the AED a person is taking or it can happen because the cerebellum of the brain which controls a persons balance is being affected do to the epilepsy, that's why a neuro or epi will have a person try and walk a straight line walking heel to toe without looking down at the floor. I always pull to the right when I do this and it's the RTL of my brain that's causing the sz. Here's wishing you well and May God Bless You!

Sue

thanks so much every one will do

Sorry for the delay, my mother has been in town. I had something similar but it has a variety of types. I went to have the Optomap test done and she suggested it's actually these small fat ball things in my eyes (gross!!). I do have some visual disturbances after my seizures (blurred, halos, etc.) but the light spots or those floating things (not to be sick but I call them air sperm, lol) my optometrist said were fat spots.

Anytime you have any visual changes, you should have some extensive eye testing done. Look for an optometrist who specializes in working with people with head trauma; they have the good machines! If you're anywhere near Orange County, let me know. I know the best one around and she has amazing history working with people who have Epilepsy and other various neurological problems.

Also, my man got a new big screen tv which triggered my seizures. I eventually got used to it. He got me a HUGE monitor for my B-day so that took some getting used to. Both are LCD/Plasma.

Gotta run my mom to airport!

Ellie - the Specialist is called "Neuro-ophthalmology"

:hug:

Not mine :) I mean an actual Optometrist (FCOVD) not Ophthalmologist. I have both.

Oops! I have a Regular Optometrist too. I only saw a
Neuro-ophthalmologist one time years ago (early 80s' I think),
when he confirmed my vision was 20/20, and I had night blindness
and that the vision problem was neuro-related. The State Voc.
Rehab. Dept. sent me to him as they thought I needed glasses
after obtaining a report from the Optometrist stating my vision
was fine and it was a neuro-issue. They never did anything
after that.

Please accept my apologies!
:sorry:

No need to apologize, silly! Yeah, same thing for me - kinda. They did testing over several days and my vision changes which ended up with a neuro-related diagnosis. Basically, one day my vision is crap and there's nothing I can do about it. Sometimes I can't focus, so my eyes keep trying with no luck. She also said I had a severe midline shift to my right, however, I've grown used to that and just learn to walk an extra step to the opposite side. She also had suspected some vestibular problems, but that came back OK for the most part (sometimes I tip over, but I think it's kind of funny :D).

It's rough, but my Optometrist was the only 'eye doctor' I've seen who did 3 days of straight testing (3-4 hours per day AND only charged for one visit) to confirm her diagnosis.

I remember one thing though, it's kind of funny. They were doing the thing where you put your eyes up to that small machine that reminds me of one of those viewer things I had when I was a kid (round disc with pictures, and you click the handle to change pictures). She told me to say what number the line was on, it was 1-12. I was chucking out numbers, "Two!, Four!, Eleven!". I was so thrilled that I could call them all so fast, up until I realized that it should have stopped on one number :(. It was my eyes trying to focus and failing. I think eye tests are the only tests I have that I really enjoy. :D Even if I fail, they sure are fun!!

Anyway, more towards the topic.

I highly recommend (all of you) getting the Optomap test done. It is just like your dental x-rays. It stays on file forever! It's like $40.00 without insurance, and if you do that once a year or so it will let them better look for changes, too. I think this website has pictures and maybe videos: http://www.optos.com/us/

Hi Ellie, this one looks like the ring, just like out of that horror movie the grudge, dont know if you've seen those movies and i wish i hadnt now. hee hee, but it looks very much the same and it's like looking at a photo of an eclips of the sun. but realy white, just as i blink in the dark or when i wake and open my eye's, sorry guys it's just this is all new to me as i didnt know what i'd been experiancing was even aura's, i've seen blobs and stuff for years, my balance issues have been my priority till now the balance is in remission, and the other stuff has just started to get bad. at first i thought this could be some sort of mental illness due to stress of the balance prob, but now i realise it sounds way to much like i have E.
i realy do apriciat all your imput and hope i'm not pushing too hard for info, its just after 13 years of illness i need some answers. thanks again. jen