seems like anything thatrequires concentration helps with the jerksEven typing here reading or driving seems to keep them awayI tried clonasapn but their worse when it wears off.I do not get any help though walking seems worse if i take the clonaspan. have to watch to muh exercise also triggers them

Hi John,
I'm sorry to hear that the sz. are getting hard to control. I've had 5 different types of sz. over the yrs. and no matter what I took or did including surgery it just didn't stop my sz. I later found out that often my sz. would increase at certain times of the yr. do to the amount of serotonin outside. These are called "seasonal seizures", This may be what's going on with you sometimes to much serotonin outside can cause sz. for some people in the spring and summer compared to the fall and winter. Have you tried taking vitamin B12 as I mentioned before? Also ask your Dr. to do a DNA test on you to find the correct sz. med for you with the least side effect. This is what I had done and I found out I was drug resistant to all sz. meds out on the market now and I've tried over 10 different meds. Give the B12 a try and see if that helps. I wish you the best of luck and May God Bless You!

Sue

Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

hi,b12 worksbut it seems i get more anxiety from
My biggest anxiety id finding a nice smart doctor,i know there out there just have to keep looking