NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Epilepsy (https://www.neurotalk.org/epilepsy/)
-   -   How Long Have You (https://www.neurotalk.org/epilepsy/221-how-long-have-you.html)

Julie 09-18-2006 10:12 AM

I have not had one in over a year and my son has had no grand mals since 2001 and no atonic in well over a year!

Rocking4Epilepsy 09-20-2006 07:21 PM

Thanks for sharing..Hope we can go even longer with out and sz

Hugs

CoolAngel26 09-20-2006 07:23 PM

19 yrs..but,taking meds as a precaution.;)

Ellie 09-20-2006 07:29 PM

Last night.

Do I win anything?! :D

Rocking4Epilepsy 09-20-2006 08:08 PM

Quote:

Originally Posted by Ellie (Post 9728)
Last night.

Do I win anything?! :D

((((Ellie)))) That is not the kind of news I like to hear:(

Lets hope you now go along time without

Hugs

Ellie 09-20-2006 08:11 PM

They are still toying with my meds, I call it the 'Lab Rat' phase. :D

trekker 09-20-2006 08:41 PM

Husband hasn't had one in a year and a half. And that one was my fault. I was extremely tired and missed a med dose then a couple of doses later I was late with his meds by an hour and he seized. Quick way to a guilt trip.

In a way though it worked out for the best because he had been seizure free for 2-3 years and everyone kind of relaxed. Then with this one we discovered just how low his seizure threshold is...that he can't miss even one dose. He is on Tegretol and Neurontin. The neurontin made a big difference because he was not getting total control on the Tegretol...seizures every 3-4 months. He also takes Ativan for several reasons and I have permission to give him an extra dose if I see "pre-seizure activity. His seizures are set off by light and so we keep a small towel near him and put it over his eyes if he seems to be in trouble...it works for him thankfully. If I move fast enough I have been able to stop a seizure in it's tracks (the doctors have a hard time believing this but it's happened many times and so I know it's true).

CoolAngel26 09-20-2006 08:54 PM

Quote:

Originally Posted by Ellie (Post 9749)
They are still toying with my meds, I call it the 'Lab Rat' phase. :D

Lab rat..hmm..been there,no fun.Hang in there..:(

trippinroses 10-22-2006 09:57 PM

I havent had a cp since july or aug of 2005, but had a sp on fri, i think :(
I think im going to end up getting my meds increased


All times are GMT -5. The time now is 04:15 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.