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Old 09-18-2006, 10:12 AM #11
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I have not had one in over a year and my son has had no grand mals since 2001 and no atonic in well over a year!
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Old 09-20-2006, 07:21 PM #12
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Thanks for sharing..Hope we can go even longer with out and sz

Hugs
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Old 09-20-2006, 07:23 PM #13
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19 yrs..but,taking meds as a precaution.
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Old 09-20-2006, 07:29 PM #14
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Last night.

Do I win anything?!
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Old 09-20-2006, 08:08 PM #15
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Quote:
Originally Posted by Ellie View Post
Last night.

Do I win anything?!
((((Ellie)))) That is not the kind of news I like to hear

Lets hope you now go along time without

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Old 09-20-2006, 08:11 PM #16
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They are still toying with my meds, I call it the 'Lab Rat' phase.
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Old 09-20-2006, 08:41 PM #17
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Husband hasn't had one in a year and a half. And that one was my fault. I was extremely tired and missed a med dose then a couple of doses later I was late with his meds by an hour and he seized. Quick way to a guilt trip.

In a way though it worked out for the best because he had been seizure free for 2-3 years and everyone kind of relaxed. Then with this one we discovered just how low his seizure threshold is...that he can't miss even one dose. He is on Tegretol and Neurontin. The neurontin made a big difference because he was not getting total control on the Tegretol...seizures every 3-4 months. He also takes Ativan for several reasons and I have permission to give him an extra dose if I see "pre-seizure activity. His seizures are set off by light and so we keep a small towel near him and put it over his eyes if he seems to be in trouble...it works for him thankfully. If I move fast enough I have been able to stop a seizure in it's tracks (the doctors have a hard time believing this but it's happened many times and so I know it's true).
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Old 09-20-2006, 08:54 PM #18
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Quote:
Originally Posted by Ellie View Post
They are still toying with my meds, I call it the 'Lab Rat' phase.
Lab rat..hmm..been there,no fun.Hang in there..
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Old 10-22-2006, 09:57 PM #19
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I havent had a cp since july or aug of 2005, but had a sp on fri, i think
I think im going to end up getting my meds increased
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