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How Long Have You

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Old 08-28-2006, 10:29 AM   #1
Rocking4Epilepsy
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Default How Long Have You

been sz free?

When was your last sz?
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Old 08-28-2006, 11:15 AM   #2
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2 1/2 months...Woke up to get ready to hear my Sunday radio show and something said, "Don't get up yet..." About 10 min later, I had a GM in bed. Now I'm on a low dose of med and doing great.



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Old 08-28-2006, 11:16 AM   #3
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I am glad you are now doing great...

What meds are you taking?
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Old 08-28-2006, 01:49 PM   #4
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60 mg phenobarb at night. Thank God I don't need more. I have an autistic child and can't afford to be whipped on med, which is what they have all done to me.


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Old 08-28-2006, 02:20 PM   #5
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I had my last CP seizure on Feb. 4/06, then a grade 2 oligodendroglioma tumor was removed from left temporal lobe on Feb. 14. Not a sz since then.
Currently taking 1200 Trileptal and 125 Topamax which will be reduced in Oct.
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Old 09-01-2006, 11:29 AM   #6
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About a year and a half. Had my last one at my father's funeral. There have been several times I felt like one was going to happen, but they never materlized.
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"If you are going through h e l l, keep going."
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Work like you don't need money, Love like you've never been hurt,
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Old 09-02-2006, 11:19 PM   #7
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Tanks for sharing
The longest my son ever went was 36 days


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Old 09-14-2006, 02:20 PM   #8
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Hi Jingle : I am not sure if you remember me, I was fourtsar on Brainchat. I was friends with Shan. Congrats on your being sz free. Have you heard from Shan? She is remarried to a minster and off her meds and sz free the last I heard. She has changed alot . She is very happy .
Wishing you a continued sz free life.

enjoy
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Old 09-14-2006, 04:51 PM   #9
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It will be 6 years on October 17th (after surgery)...except for a seizure I had last October when my husband and I were seperated. I still can't believe the stress brought it on after a temporal lobectomy and 5 years seizure free (at the time). So, I guess it's really been almost a year. It's like an alcoholic being sober for 20 years but has a drink a year ago. That blows it.

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Old 09-17-2006, 07:58 AM   #10
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38 years. Best was less than 2 mos on Topamax and couldn't take side effects. Otherwise amybe 3 days... absence szs.
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