Epilepsy For support and discussion about Epilepsy and Seizure Disorders.


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Old 09-30-2006, 09:56 AM #11
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My VNS isn't perfect but it has helped some. It has made my sz's less severe & happening less often.

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Old 09-30-2006, 10:17 AM #12
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Default Vagus Nerve Stimulator -VNS and Epilepsy

Yes, In case he doesn't show up in BrainTalk today, Howdydave's experience and very thorough explantion with and of the Vagus Nerve Stimulator is right here on his site's link.
http://www.howdydave.com/vns.html
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Old 09-30-2006, 09:59 PM #13
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Howdy Linnie!

Gee... I was just gonna' say that too!

BTW: The site title is:
The VNS From A Patient's Point Of View

It can be directly accessed from a button on my site.

At this time I have better control than I ever had before.
In all honesty I must say that I'm not sure whether it's due
to the VNS, diagnosis & treatment for sleep apnea or a combination
of the two.
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Secondary Epileptogenesis

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Old 09-30-2006, 11:42 PM #14
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I too have had good luck with the VNS. Each year it seems to get better, except in the summer heat. The spells I do have are exstreamly shorter, easier on me and I have gone from around 5-6 to about 2 a month with no grand mal.

Preciousmoments I am so happy your children seem to be having good luck with it. I have had epilepsy since I was 12 and at that time Dilantin was about the med. there was around. Kepp up the good work.

Donna and davy it is good to see you here.

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Old 10-01-2006, 11:44 AM #15
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Hi, My son is Derrick and he is 15 and has had the VNS for 2 years and
3 months now. Honestly the VNS has helped the seizures in some ways
and not in others. It has shortened the postictal time, made the quality of
his life a lot better. And he can know have times that he does go without
having any seizrues. But there are times that he has many too.

But I would say in a heartbeat that he would definately do it again. He
is one that can and does use his own magnet. He teaches others how
to use his magnet, and he is very happy to tell all about when and why
he needs it.

HE is very pleased they came up with this as a helper for medicines.

He is still on 3 medicines, but not the same 3 he was on when he started
this, and not the same dosages.

Donna
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