Today I saw the neuro. and got the "minor" result of the VEEG I had last month. The mess that stirred up the reason why the VEEG was done began a year ago excactly when the clusters (for the first time) left me w/ the rt side not working for almost a day.
O.K.- back to the story. The nuero. wrote that he had seen "minor spells" written in the papers from the VEEG moniter people. That I read from the records from the hospital. I heard him say psuedo when he saw me after the seizure. So I assumed aside from the stress maybe I was a case. )

Glad to know I'm not one & that my neuro. actually did read the results from the VEEG. He asked what I thought about the VEEG. Personally, I was disappointed. The one long, annoying seizure was a walk in the park comparied to the prior seizure. He said he was worried & not happy @ all w/ the results. That activaty that I've griped about to him for a year has finally been understood. Obviously, my bitching paid off. He's talking about the specta "test" (something like that) & going back to the second surgeon who put the 2 clips in after removing the AVM. Maybe a second opinion he said. I'll haul him a copy of the second surgery & until then will have to deal w/ upping the lamictal.
I think he was disappointed that I didn't freak out. I've told him before that absolutely nothing would surprise me.

Hi flopper,
I'm sorry to hear things aren't going to well. It sounds to me like your Dr. is taking his/her sweet time. When I had my veeg done I knew the results before I was discharged from the hospital.
My personal opionion is that it would be a good idea to have a Spect and Pet scan done like the Dr. mentioned these 2 tests will show how the blood flow is in the brain, and if there's any problems going on like a tumor, infection, sz. activity etc. I had both of these tests done before surgery and found them amazing on how they showed all the activity going on in my brain. Here's wishing you well and May God Bless You!

Sue

Thanks Porkette-
Your opinion rates higher than my neuros any day.
My family Dr. had the tests done for clogged arteries & they came back fine. I did read on the records from the 2nd surgeon that they only went so far because of the damage it possibly would cause. So what did they not "fix" is my question. I recall the mess the first surgeon, so I just assume it was the scars the second surgeon couldn't repair.

So I see the neuro in 2 months. By then the lamictal will be in my system & possibly the neuro is waiting to see how that drug does & hopefully no rash will cause another delay.

Hi flopper,
I wanted to let you know that my first surgery when they did the surgery for a veeg caused more scars on the brain and I never found out about it until they did my ultrasound surgery 1 yr. later when I had a different neurosurgeon who told me that the first neurosurgeon caused more scars on the brain. I find it interesting how we have a little in common. Here's wishing you well and May God Bless You!

Sue

Hi Flopper I'm sorry things aren't going as quickly or as smoothly as you'd like. But it sounds like they are on the right road, getting all the specialized tests done.

I was recently dx'ed with E, had a standard EEG, and was put first on Phenytoin, now starting the switch to Lamictal. And that's all I know. That's what I was told, and nothing more. I have learned more from this site than from my dr.

I found NT because I have rsd/crps, not for the E... but I have found this forum to very helpful. I have asked for a copy of my records, I'd like to find out more about what is going on with me. (I waited two weeks and called back, to find that I needed to sign a release to release them to myself, sheesh. And they didn't bother to tell me that when I called the first time.) Until my own dx, the last experience I had with E was a friend's son back in the late 70's, lol. All I knew about were 3 categories of seizures, no where near as many as there are now. I knew what I had were grand-mal, but I had NO idea that I was having the "absent" type too, I thought I was nodding-off from all the meds and pain pills I have to take. (I have E, rsd/crps and aids, so I never know what disease is causing what symptom... the neuro thinks the rsd/crps caused the E in the first place )

So, in a way you are lucky. You have what seem like pretty good and efficient dr.s, who are taking all necessary steps and tests.

So keep us posted on how all the tests go. I learn a LOT from you all talking about them, I can now talk to the dr. much more intelligibly at my next appt. Thanks everyone!

Came in the mail.

Dictation: The interictal recording showed an alpha rhythm of 9 Hz with continuous polymorphic delta activity over the left temporal head region. Prominent spikes were present over the left mid temporal electrode. The spike activity waxed & waned in frequency & @ times were quasi periodic 1 Hz spike activity over the left temporal head region. In addition, there were frequent electrographic seizures that sometimes went on for 10-60 minutes.
Throughout the recording there were push button events. (there were 20 in 3 days) During all these episodes the patient was fully awake & alert w/o any alter mentation, however, she was clearly reaching over to right arm & describing sensory phenomenom.

Summory of Findings:

1: spikes, frequent, left temporal.
2: Intermittent polymorphic delta, left temporal.
3: Epilepsy partialis continual.

Clinical Interpretation: This is clearly an abnormal VEEG study w/ continuous polymorphic delta & spikes over the left temporal head region. In addition, there was electrographic seizure activity consistent w/ epilepsy partialis continual w/ activity over the left temporal head region w/ some spread to the parasagittal. Theer was no altered mentation, but the patient did have sensory phenomenon. Further clinical correlation is advised.

So it took a year & some major bitching to get this done. Basically, it didn't tell me anything that I didn't know.