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Grand Mal Seizures - medication and effect on the brain!

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Old 02-24-2016, 03:52 PM   #1
phyllis78
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Default Grand Mal Seizures - medication and effect on the brain!

Good day,

Have there been any longitudinal studies on the long term side effects of children who took carbamazepine tegratol? I am asking for myself as I took this drug from the age of 9-11 for grand mal seizures. I’ve tried to look through journals of medicine, but I have never found research on it. I am curious if there are any forums or areas where I can contribute experiences/side effects etc.

Although this may seem like something I should ask a neurologist about, I figure there may be an abundance of people who may have taken the same medication for the same reason. And because it dealt with the cessation of my seizures (and how my mind developed), I figure this may be the starting point for my inquiry.

Thanks
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Old 02-26-2016, 04:20 PM   #2
Porkette
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Hi Phyllis,
I used to take tegretol for many yrs. for absence and complex partial sz. I have never head to the drug being used for grand mal sz. I do know that tegretol is addictive and it takes some people a long time to get off the drug.
Also you should never eat grapefruit or drink grapefruit juice while on the drug because the enzymes in the fruit messes up the drug.
Tegretol can cause kidney stone and infections which is one problem I had and if a person needs any type of antibiotic for anything you must be very careful because often an antibiotic will make the drug toxic. This happened to me a few yrs. ago after having to go onto a antibiotic for pneumonia and I ended up in the hospital with toxic poisoning.
Tegretol can cause a person to be very moody at times and I was on it for many yrs. and then I broke out with a rash from the drug. If you are allergic to lamictal or trileptal you will more than likely be allegic to tegretol. Tegretol and trileptal and very similar. Here's wishing you well and May God Bless You!

Sue
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"Thanks for this!" says:
Darlene (02-26-2016), phyllis78 (02-29-2016)
Old 02-29-2016, 03:35 AM   #3
phyllis78
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Default Wow!

Quote:
Originally Posted by Porkette View Post
Hi Phyllis,
I used to take tegretol for many yrs. for absence and complex partial sz. I have never head to the drug being used for grand mal sz. I do know that tegretol is addictive and it takes some people a long time to get off the drug.
Also you should never eat grapefruit or drink grapefruit juice while on the drug because the enzymes in the fruit messes up the drug.
Tegretol can cause kidney stone and infections which is one problem I had and if a person needs any type of antibiotic for anything you must be very careful because often an antibiotic will make the drug toxic. This happened to me a few yrs. ago after having to go onto a antibiotic for pneumonia and I ended up in the hospital with toxic poisoning.
Tegretol can cause a person to be very moody at times and I was on it for many yrs. and then I broke out with a rash from the drug. If you are allergic to lamictal or trileptal you will more than likely be allegic to tegretol. Tegretol and trileptal and very similar. Here's wishing you well and May God Bless You!

Sue
Wow! I never knew that it was an addictive medication. I am totally taken back. It makes sense how I felt for so many years afterwards. If anything my mind was in a cloud up until I was 17.
The neurologist weaned me off of it at around 11 years old (took it from 9y-11). I suppose the side effect to that drug was the cloudiness/living in my own bubble for as long as I did.
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