Thank you for the reply! I have the videos on my camera, but the problem is it's like a 1" screen, they can't see anything on that. Maybe I can ask the pedi neurol if she has an email address I could send the link to. I won't see her at the EEG though. It's being done at a children's hospital and she has an office elsewhere.

Hi everyone. I just found this thread

I'm so glad that ives has somewhere to ask about the seizures investigations as that's not something either of my children have nor myself have although my son did have some tests when he was little to rule out seizure activity. I've been replying to ives on the TS forum.

There are lots of different eye tics. Eye rolling can actually be a tic. I'm not saying it is in her son's case 'cause I'm not a doctor, but just wanted to post a couple of lists of tics so that might help a little. There's a lot of overlap in many different conditions. It's not possible for me to say from looking at the videos. I just hope that ives can get this sorted out as soon as possible just in case they _are_ seizure because I know that's really important.

http://tourettenowwhat.tripod.com/al...cs.htm#TicList
List of common tics.
http://www.tourettesyndrome.net/Files/CommonTics.PDF
Common Tics
Those lists are just guides, they don't include all possible tics.
The interesting thing is that if you look through those lists of tics you'll find a lot that could also be part of a seizure disorder too.

I hope you don't mind I posted that, but there are so many different sorts of eye tics. Not everyone has the same tics.

Dawn

I am going to reply here as well as on TS in case others are following and will benefit from the answers you receive

I know very little about seizures and so honestly cant comment on that........
however, the eye blinking, eye rolling as well as the lip/tongue movement were all tics in my son, To the point where had you not had a doc suggest seizures, I would have looked at your son and thought "hmmm, that looks like TS or a tic disorder"

so again confirmation on how different things can sometimes manifest so similarly, and why professional dx is so very important

will post more on the TS forum

Thanks for the info, Lara. Yep, I'm on both forums trying to get this sorted out

I have a couple more questions to bother you all with, thanks so much any response, I truly appreciate it!!

I read something someone had written about her son, saying "he wasn't having seizures at the time, but WAS having lots of activity".....

Now, based on that, could my son be having *activity* during all this blinking etc? My hubby was saying because the blinking is so frequent, it can't be seizures-- he talks to us throughout all teh blining and seems to know what is going on etc. I see what he is saying but even said to him before, maybe it is activity. Then I read what the other mom said and thought maybe that could be right...? Maybe sometimes he does stare off for a couple seconds (absence seizures) and otherwise, in between is a lot of "activity"? If that sounds stupid, please excuse my ignorance, as I'm new to all this!

Also, as far as sleep goes... he tics even when he is half asleep... barely awake but the noises stop the second he falls asleep. I do see some movements while sleeping but that could be normal in people that don't have tics, I think. He came into my bed a little while ago and went backt o sleep so I was watching him sleep. His hands, feet, and shoulders would twitch (not at the same time). Don't know if it's related to anything or not. I really didn't watch him that long, I got up and ran out here to post this!

eta: forgot another question... if he having activity, would that show on an EEG, or would it have to be an actual seizure? I don't know a lot about this.

Thanks Chemar, I hadn't seen your repsonse when I posted here before.

I was just watching my daughter sleep and she had some twicthing as well, and she has NO tics when awake. So I think what Anthony was doing could just be normal things that people do while sleeping.

Hi Dawn,
I know nothing about TS but from what you have discribed with Anthony jerking around a little it could be juvenille myoclonic seizures (jms) this type of sz. often happens to people with absence (petit mal) sz. Take note and notice if Anthony jerks around when he first goes to bed and when he first wakes up in the morning because this is the time it happens the most.
Also in regards to activity going on, the e.e.g. should pick it up because unless the activity is to deep in the brain. Often during my simple partial sz. I will see colors flashing back and forth in my eyes and have a nervous feeling in my stomach then it leads into a cp sz. for me. If your son is having any of that activity going on or smells odd odors then he's having a simple partial sz. (aura) sz. which is common in many people. Here's wishing you and your son well and May God Bless You!

Sue

Keep us posted what the Neurologist says! You've got
us ALL curious!

But be assured he's in my thoughts and prayers nonetheless!
Poor thing!

ok, I called the ped neurol and asked if there's an email address and there isn't... BUT I just put those videos on a CD-R and I'm mailing them today so she can see. Hopefully she watches them

Hi Dawn,
You are playing it smart puting everything on a CD for the neuro to see. I wanted to let you know if you have any questions you can also call The Epilepsy Foundation of America at 1-800-332-1000 and they will give you info. over the phone or they can send it to you in the mail. Here's wishing only the best for Anthony and you May God Bless You Both!

Sue

Yikes, just found out for the EEG he has to be sleep deprived so he'll go to sleep easily at the hospital for the EEG. They said no more than 5 hours of sleep tonight! Then I have to drive him over an hour to the hospital while keeping him awake in the car I'll keep my fingers crossed!