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-   -   Hi, new here, brought 4yo to neurologist yesterday (https://www.neurotalk.org/epilepsy/23760-hi-brought-4yo-neurologist-yesterday.html)

ives6797 07-29-2007 08:42 AM

Thanks, I'll try to call tomorrow and tell them I really need to know because I want to talk to his therapists at school, and his last day of summer services is Tuesday morning, so I'd really like to hear on Monday. If she actually went to the hospital this weekend to get the results then maybe she will know. How long does it take her to read the results and dictate them or whatever they do? If she got them this weekend, do you think she will be able to tell me tomorrow?

ives6797 07-30-2007 09:37 AM

I'm on such pins and needles!!!! I'm going to find out today!!!! The dr FINALLY got herself over to the hospital over the weekend (it's been almost 2 weeks)!! I called and talked to the receptionist, who said the report wasn't there, hadn't been dictated, BUT said the dr wrote down that it was 'borderline' and the receptionist said therefore it probably wasn't considered 'normal'.

I'm guessing maybe we'll want to look into further testing, like 24 hour EEG??

I was afraid the EEG would miss soemthing because he really didn't have as much of the ticcing during that 30 min as he usually does. Maybe that's why it was only borderline??

I'll be back when I hear from the dr!

ives6797 07-30-2007 02:44 PM

Well I talked to her...

She said she called it borderline because of some activity right before he fell asleep but thinks it is probably normal. Something about Vertex activity that is normal during sleep, this was right before he fell asleep.

She thinks it is Tourette, I asked her outright and she said that she does think that's it. :( :Sigh:

Ellie 07-30-2007 04:20 PM

Not that I like second guessing doctors. But I'd look into getting a second opinion. I also think a 24-48 VEEG would be ideal for your son.

I'm so sorry you have to go through this, it's hard enough to deal with as it is, but then to be forced into waiting and waiting must be extremely frustrating. I hope you get clear answers soon. :)

Porkette 07-30-2007 06:16 PM

Hi Dawn,
I'm happy to hear that you finally got the info. you've been waiting for from the neuro. I agree with Ellie that you might want to get a 2nd opinion and have a veeg done. They found much more detail regarding my sz. and the areas of my brain causing the sz. when they did a veeg. Here's wishing you and the family well. May God Bless All of You!

Sue


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