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Old 07-14-2007, 09:15 AM #1
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ives6797 ives6797 is offline
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15 yr Member
ives6797 ives6797 is offline
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Join Date: Jul 2007
Location: CT
Posts: 67
15 yr Member
Confused Hi, new here, brought 4yo to neurologist yesterday

I brought my 4yo son Anthony (5/9/03) to a pedi neurologist yesterday hoping to find out exactly what is going on with him. We knew he had Sensory Integration issues already (sensory seeker). She confirmed that, and says that he has definitely neurological impairment, the root of everything is neurological... (SID, hypotonia, oral motor, apraxia etc). Anyway she thinks he may be having seizure activity and he's having an EEG on Wednesday. If it comes back abnormal, then she said he needs to come in right away, I think for meds. If the EEG is normal, then she said he still has neurological impairment, just that you can't see on the EEG.

He has tics, which the school OT thought was stimming due to his sensory issues. The neuro says it is not stimming but tics. He had LOTS of eye blinking for 8 months or so and then stopped for a month or two. The blinking came back last week, along with a vocal tic. He also does something with his lips too but not as often as the constant blinking/vocal. She did not bring up Tourette's so I assumed it was not suspected. But now I'm starting to think that even if he is having seizures, he may still have Tourette. I can't really find info on kids with epilepsy having vocal tics. From researching his motor AND vocal tics, it sure looks like Tourette's. So now I am thinking that she didn't bring up Tourette just because it hasn't been a year yet... will be a year in about September (that he's had the blinking) and that is when she said to go back (if the EEG is normal, if it's abnormal he goes back sooner).

I am hoping the EEG is extremely reliable in diagnosing it? I mean, if he doesn't happen to have one during the EEG, then will his EEG come out as "normal"? I don't want it to be missed if he really does have it. I know they said he would be sedated during it. It might be both awake and sedated and I think they said it is for 2 hours total.

Can kids with Epilepsy can have vocal tics??? Are Sensory Integration problems common in kids with petit mal seizures? Are tics common??

Any advice/thoughts???

Thanks so much!

Dawn
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