FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Epilepsy For support and discussion about Epilepsy and Seizure Disorders. |
|
Thread Tools | Display Modes |
10-23-2016, 04:32 PM | #1 | |||
|
||||
Member
|
Does anyone else have attacks of myoclonus, which are like epileptic seizures in some ways?
I have been suffering from these for almost a year now and they are getting worse. They happen when I stand up and try to move, mainly. My left arm jerks, some times my whole body jerks, and sometimes I have episodes of 'greying out' not a black out exactly, but then I FALL, hard. This is a description and I meet all the criteria. I've had two EEGs that are perfectly normal, and yet I have these 'episodes' that are so scary and dangerous. Primary progressive myoclonus of aging. - PubMed - NCBI If anyone knows what I"m talking about, I hope they reply to give me some comfort that I'm not alone with this. Right now I am on a large dose of gabapentin, for nerve pain. And Myoclonus can be a side effect, so I am tapering off as quickly as possible. My neurologist doubts that it is the gabapentin and is prepared to try a medication to stop or slow down the attacks I have. This medication is: Valproic Acid. Does anyone know anything about this treatment? I am feeling very vulnerable right now. Regards, ElaineD |
|||
Reply With Quote |
"Thanks for this!" says: | Skeezyks (01-19-2017) |
|
|
Similar Threads | ||||
Thread | Forum | |||
progressive multifocal myoclonus-diagnosis | Movement Disorders | |||
progressive multifocal myoclonus | New Member Introductions | |||
Progressive Myoclonus Epilepsy | General Health Conditions & Rare Disorders | |||
Primary Progressive? | Multiple Sclerosis | |||
Primary Progressive?? | New Member Introductions |