Hi Elaine,

I would get a second opinion if it were me, if I may ask after you've had these possible seizures do you have a headache, feel confused after it's over, and feel tired? If you do these are seizures. Also from what I read about what the Dr. said you have it can cause heart problems and take my word I have that. Heart problems can lead to seizures sometimes do to lack of blood flow to the brain. It's up to you but I would get another Drs. opinion.
Wishing You only the Best and May God Bless You!

Sue

Those are all the questions the Epilepsy specialist asked:

I don't get confused.

I don't have a headache.

I don't wet myself.

I don't feel tired.

I don't black out.

I just go down, and get back up (with difficulty because I have mobility problems).

I've had two EEGs and a sleep study with EEG in the past 3 years...all perfectly normal.

So, I really think he's right.

So I'm slowly stopping the Depakote. The doctor said if the Depakote didn't help, nothing would.

And the condition developed while I was taking 3600 mg Neurontin (Gabapentin), another reason I wondered how it could be true seizures.

SO, I'm in bed today with the bronchitis from h..l. I guess it lasts up to 3 weeks. So I'm a bed potato for today.

Thanks for all your support and care over the past week, Sue.

Love, ElaineD

Hi Elaine,

I think I know what your problem may be and that's the Neurontin. I was on
it for a short time for a concussion and it caused me to have status epilepticus seizures, then I saw on NBC DATELINE where 2 employees reported the drug co. because they found out the drug can cause seizures for people who have never had a seizure in there life. If you find you aren't having anymore problems once you get off the Neurontin you may want to see a lawyer. There's millions in lawsuits against this drug co. for what it's done to people.
Wishing you only the best and May God Bless You!

Sue

Hi Sue, I was on Neurontin for two years before the problem showed up. I did my research, and withdrew from the Neurontin. The problem did NOT go away.

I don't think it was the Neurontin.

My doctor for Epilepsy works with my ordinary Neurologist....all connected to Duke Hospital. The sense is that since I have a host of neurological problems related to autonomic neuropathy that in all probably this is just another piece of that package.

Thanks for all your help.

Hugs, Elaine