Awhile ago there was a post about epilepsy in a soap, today I saw epilepsy in a sci-fi show. It wasn't all dumb with the guy going crazy. Even though it was sci-fi it got out the info that people with E don't just fall, shake & choke. They talked about it. Seems the man died....but. He was a DJ at a night club & had a sz. but the autopsy found that he had a VNS that shoulda stopped the sz. Later they found it didn't work good cuz someone turned up the music volume or something like that (remember, it was sci-fi). I'm not sure what all occured cuz I was doing other stuff too.

lor

Thanks for sharing this lor...
I have heard so many scary stories concerning the VNS I would be afraid of getting one myself if needed...

I think for every 1 good story I hear I hear 10 bad ones...

Rocking, Contrary to what the 'bad guy' wanted you/everyone to think, epilepsy didn't cause his death. Thats one of the things the program sorta told 'EPILEPSY & SEIZURES DO NOT MEAN DEATH'. Regarding the VNS, they mentioned & showed that it should have been turned on soon as his sz started. (We know that means he should have used his magnet). I'll bet 99% of America doesn't know there's 'some sorta implant for brain stuff'. If they were watching, they know now. (P.S. I have a VNS & one of the ways to begin to tell what it is to ppl, I tell them it's sort of like a pacemaker for the brain).

I did not see the show....(wish I knew someone who taped it and willing to share)
But will mention that epilepsy doesnt alway mean death...

I just want to touch on the comment above...although this man in the show did not die from Epilepsy it DOES happen.

I hope the vns is working for you.....
Would love to hear your story.

Hugs

I'm sorry...I forgot the word "necessarily"

Please don't be sorry.....We are all here for the same thing and we all are working great together to share stories,advice and imput.

How is the vns working for you?

Hi again (lol, As I write this I guess you are on too because I just wrote above then U did a few min. later & now I am again (after my shower!)).I answered your VNS post before. I got mine in 2000. I had to get a new battery (new VNS) 2 yrs ago.too. (But you know us w/E...not good memory, so I can't tell you alot about that 2nd time). But I do remember that 1st time, if you want to know more. Mine is set to go on every 5 min. My E isn't real bad so I don't use my magnet. It could be worse if not for VNS. But I do know it's Lamictal controlling my GM's. I have SP's & CP's too. You say don't feel sorry bout anything but I feel sorta bad cuz I am luckier than many on here. I read some really sad situations that I don't deal with. But come to think of it, I never know when I will have a CP, so I willingly don't drive. I don't want to maybe hurt someone.

lor