Epilepsy For support and discussion about Epilepsy and Seizure Disorders.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 07-15-2018, 05:59 PM #1
mamafox512 mamafox512 is offline
Newly Joined
 
Join Date: Jul 2018
Posts: 1
5 yr Member
mamafox512 mamafox512 is offline
Newly Joined
 
Join Date: Jul 2018
Posts: 1
5 yr Member
Default Epilepsy Meds (I don't have epilepsy)

Hello all! I've been very confused about the past 2 months of my life and my doctors aren't giving me many answers, so here I am for support and advice!

To start off, I'm 25 years old. I do not take medications. I'm a mother of 2 who is generally healthy other than a few bad habits (nicotine being the worst and am trying to quit).

I have had "episodes" where my vision fades (tunnels out or complete loss of), my hearing goes, my ears ring, my hands and feet feel cold and I just kind of "check out", although I'm aware of everything going on around me.

My first visit to the ER, they put me on a 2 week heart monitor - I was diagnosed with a Right Bundle Branch Block. Apparently that has nothing to do with my symptoms.

After more episodes at work (no, my job is not stressful, I love it!) I went to a different hospital and was given a no-driving order from an on-call doctor thinking I was having petit mal seizures.

I have done a 24 hour sleep deprived EEG as well as a brain MRI with and w/o contrast. I have also been seen by an ENT and had a full metabolic blood panel done, as well as testing all of my thyroid and parathyroid levels because I also have a 3-year old thyroid tumor that we are monitoring. All my levels have been perfectly fine.

I have requested a tilt-table test for circulatory issues, but my neurologist is refusing until I take an epilepsy medication for 3 weeks, which I am not really comfortable doing.

I'm not really sure how to handle all of this! Any insight?

Also, I am attaching a photo of my brain MRI - I requested my MRI on a CD and I found a very weird gray-matter oval on the t1 axial view. It's directly to the right of the cervical cord. I have looked at hundreds of MRI sequences and cannot find this big spot anywhere on any others.. ideas?

Episode symptoms:
Bilateral shooting pain up neck into ears
Lightheadedness
Chest pain, rapid heart rate
Shaky hands, chest tremors
Feeling like hands and feet are dipped in ice water
Heat & cold flashes and sweats
Tunnel vision / loss of vision
Pulsatile tinnitus / loss of hearing

Thanks for reading!
Attached Images
File Type: jpg Brain MRI.jpg (60.1 KB, 51 views)
mamafox512 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dmom3005 (10-02-2018)
 

Tags
epilepsy, hands, loss, mri, vision


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Epilepsy, non working meds, and fighting with disability. UGH! nicd577 Epilepsy 8 06-10-2013 04:30 PM
Epilepsy AND RSD?? nancyinLA Reflex Sympathetic Dystrophy (RSD and CRPS) 0 08-02-2009 11:07 PM
EEG says epilepsy owen Traumatic Brain Injury and Post Concussion Syndrome 7 03-19-2008 12:36 PM
epilepsy dandy New Member Introductions 4 10-09-2007 01:47 AM
Cancer drugs/Epilepsy meds Hanna Epilepsy 9 12-05-2006 01:43 PM


All times are GMT -5. The time now is 03:42 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.