Epilepsy For support and discussion about Epilepsy and Seizure Disorders.

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Old 12-30-2018, 08:59 PM #1
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southie southie is offline
Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
15 yr Member
southie southie is offline
southie's Avatar
Join Date: Apr 2007
Location: Tampa Bay Region, Florida
Posts: 456
15 yr Member
Wink Just Updating - I hadn't disappeared! :)

Hello all! Southie here!
I haven't disappeared! But I've been playing
Scrabble with Doc John!
To give everyone the update:
1) ** killed off all my AEDS! :-/
2) It's been 10 years since I've last taken any meds.
3) So the proof goes in this manner:
ON meds or OFF meds - it doesn't control the nocturnal seizures.

During normal "daylight" hours, I am and had been fine all along. So it's been "life back to normalcy" as usual, once in a "Blue Moon" I might be floored by an Epileptic attack of some type to some degree. The Doctors have ruled it "isolated" because I do not typically seize when I am awake.

The truth be told, our brains are very busy when we're sleeping; and Docs have all confirmed ... it's best to leave me alone and let me be. There's nothing they can do to stop the seizures in my sleep - however, I do not seize every single night - it is estimated approximately 2-3 seizures in typically late Stage 2 and Stage 3 sleep.

That is the final disposition. I never did lose my driver's license; and still very strongly recommended to attain it. With over 50 years worth of historical establishment and documentation (or better yet, a Life Diary)

The Epilepsy is still confirmed as a Rare type of Mitochondrial and ultra-rare type which there's only 2 people known in the entire world to possess it (to date) - they just merely gave this type a Alpha-Numeric Case File. No one would be able to search or research it. But it falls in the ever-expanding Leigh's Syndrome (aka Leigh's Disease). It is interesting to learn that Leigh's once was clumped into a cess-pile of poop; has currently been all layered out via the "poop".

Notice I used the word POOP? That's cause Epilepsy is POOP!




" Vujà Dé - The feeling you've
never been in here before!"

Daily Feedbag of Zonegran, Clonazepam, and Folic Acid

Last edited by Chemar; 01-01-2019 at 11:59 AM. Reason: **Reminder of limiting direct Political comments please per guidelines
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leighs, meds, poop, seizures, type

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